well

Question:

If I am 60 something, and I put on the TV constantly in a foreign language quite different from English, will I eventually learn the language simply from exposure, or will it always sound like babble babble bump? I speak simply of leaving the TV on in the language, but making no conscious effort to learn or retain. I simply stare at the pictures, hear the sound, and say to myself uh yes I see. I also am not referring to watching a language a previously studied in High school or College. If I studied Spanish and French and am a native speaker of English, can I acquire Polish or Russian simply by staring at the Cable Channel in that language, or will I become some kind of living cartoon in the house? I wish to …… well, you get the idea

immigrants learn english this way sometimes, so i guess you could. although it would probably be easiest to learn spanish as it has many cognates- words that are almost the same as english. languages with totally unfamiliar sounds and words would be the hardest to learn, i would think. kate

Response:

– Hide quoted text — Show quoted text – If I am 60 something, and I put on the TV constantly in a foreign language quite different from English, will I eventually learn the language simply from exposure, or will it always sound like babble babble bump? I speak simply of leaving the TV on in the language, but making no conscious effort to learn or retain. I simply stare at the pictures, hear the sound, and say to myself uh yes I see. I also am not referring to watching a language a previously studied in High school or College. If I studied Spanish and French and am a native speaker of English, can I acquire Polish or Russian simply by staring at the Cable Channel in that language, or will I become some kind of living cartoon in the house? I wish to …… well, you get the idea immigrants learn english this way sometimes, so i guess you could. although it would probably be easiest to learn spanish as it has many cognates- words that are almost the same as english. languages with totally unfamiliar sounds and words would be the hardest to learn, i would think. kate

I’m pretty good at languages – I speak 2 fluently, a third pretty well, four more well enough to read a newspaper and have simple conversations, a few more so with a few words and some sign language I can make myself understood.  But watching TV in a foreign langage is one of the hardest things to me.  I can only watch TV in my fluent languages.  Problem is, if you’ve learned a language in school, you have mostly a visual grasp of the words, and as you listen, you are madly trying to sort out individual words from this continuous stream of sounds, correlate them to the words you know, work out what the whole sentence means – and by then, the speaker is 3 sentences farther along.  Also native speakers drop words and don’t pronounce them the way you learned them in school.  We had a Polish kid staying with us, trying to learn some English, and he asked me once: what does garragerup mean?  Garragerup means I have got to get up.  You see the problem. But then when you’re living in a country and being immersed in the language you don’t have the same visual-auditory disconnect.  You hear it all around you, catch the odd word, try to use it, get feedback, gradually you build up a vocabulary and some kind of feel for how it works.  That’s how kids learn language – pretty much unconsciously.  And watching TV can certainly be part of that process.  If you learn a language that way as an adult, you probably won’t ever get it quite right, but in a year or so you’ll get along OK and understand most things.  My mother lived in English-speaking countries for 40 years, and studied it in school, and still wasn’t very good, so I guess it’s also a matter of having a knack for it.

Response:

Thanks.  I already understand Spanish. That’s not the problem.

Response:

If I am 60 something, and I put on the TV constantly in a foreign language quite different from English, will I eventually learn the language simply from exposure, or will it always sound like babble babble bump? I speak simply of leaving the TV on in the language, but making no conscious effort to learn or retain. I simply stare at the pictures, hear the sound, and say to myself uh yes I see. I also am not referring to watching a language a previously studied in High school or College. If I studied Spanish and French and am a native speaker of English, can I acquire Polish or Russian simply by staring at the Cable Channel in that language, or will I become some kind of living cartoon in the house? I wish to …… well, you get the idea

Response:

One newbies view

Question:

- Hide quoted text — Show quoted text – If you would like to get some serious kind compassionate advice drop me an email and I’ll hook you up with the guys that have helped me tremendously in the last week.  What a concept,  I ask questions and get friendly adult advice about making my new doggies as happy as they can be.  WOW. Email me at Oh please.  You got tons of advice here.  It just wasn’t what you wanted to hear.  Why don’t you start your own group for idiot puppy buyers? There is a HUGE difference between ENDORSEMENT and SUPPORT. He’s aware what he’s doing is not endorsed. But since he’s made up his mind, the best we can do is damage control, and see that both he, and those puppies get the best start possible. The fact that he’s even asking gives those puppies better than the average dumped puppy in a shelter has. There is no reason to be hateful just because what he wants to do is different from what you want him to do. And no, he’s not a troll. He’s average new dog owner asking questions and being turned off and taking as poison advice given in a venomous manner. It’s awfully hard to believe castor oil is good for you when it’s a bitter spoonful to swallow.

Here’s diddler at her best. "Let’s just say it was UGLY": "Franticly And Desperately Demanding To Go Out, I Finally Put Her In The barn, Locked Securely In A Horse Stall For The Night," diddler "My Husband Shot A Dog That Had Been Tearing Up Trash.  USING FOOTHOLD TRAPS IN THE SNOW I FIND, IS NEARLY IMPOSSIBLE" WHEN YOU CAN’T FIND ANY CATS TO SHOOT, SHOOT HUNGRY DOGS INSTEAD FOR GETTING IN THE GARBAGE: I guess if I felt Danny was threatened, it’s the way I would react. There would be none left standing to deal with the threat just in case. If someone hurt him, I would not let borders or continents stop me from pursuing justice. Then again, I always feed Danny INSIDE. If someone is feeding his dog outside, his own dog might not mean THAT much to him. If he was feeding his dog outside though, many dogs are food aggressive, and that could most certainly spark a dog aggression thing. (and if the dog was penned quietly outside, what was it doing in his yard?) I shot a neighbors dog one night for chasing my horses and called him to help me find it. I would do the same for threatening my dog. My husband shot a dog that had been tearing up trash up and down our road for years making an unbelievable mess. When we finally killed the culprit, the whole road cheered. Animal control had never been able in years to catch this critter. (we think it was feral it was certainly unkempt enough to have been…. and it had been shot at by MANY of the neighbors, but it never frightened it off enough to keep it from NOT tearing up the road the next trash day) Two nights ago, Reka started acting frantic about 11pm. I let her out. It’s coyote breeding season, and she is fasci

blood levels

Question:

Does anyone know how to raise blood platelet levels, without a tranfusion? After reading all the success stories  about beating G3, I am eager to get treatment. Only problem is – I would need to significantly raise my platelet count. Not so funny but true story: One Saturday in August of 2003, I was laying on my couch watching tv with my 2 sons. I wasn’t feeling very well but didn’t know why. Suddenly, it felt as if my throat was closing up. I was having severe difficulty breathing, and I couldn’t talk. Using sign language I got my eldest son (9 yrs old) to dial 911.

Response:

What is your platelet count?  Mine varies between about 70-90,000 and was the thing that made my hepatologist most nervous about treatment.  "If they drop below 50, you’re out".  Well, it’s week 5 and they haven’t dropped, although my RBCs and WBCs have. David "ca…@comcast.net" <rollo…@yahoo.com> wrote in message

news:a_udnVSReOMGuj7fRVn-gw@comcast.com… – Hide quoted text — Show quoted text -> Does anyone know how to raise blood platelet levels, without a tranfusion? > After reading all the success stories  about beating G3, I am eager to get > treatment. Only problem is – I would need to significantly raise my > platelet > count. > Not so funny but true story: > One Saturday in August of 2003, I was laying on my couch watching tv with > my > 2 sons. I wasn’t feeling very well but didn’t know why. > Suddenly, it felt as if my throat was closing up. I was having severe > difficulty breathing, and I couldn’t talk. Using sign language I got my > eldest son (9 yrs old) to dial 911.

Response:

Mine stays in the upper 40’s Mark "Canadave" <yeahri…@noway.com> wrote in message

news:K62dnaczgv0L2T7fRVn-qg@rogers.com… – Hide quoted text — Show quoted text -> What is your platelet count?  Mine varies between about 70-90,000 and was > the thing that made my hepatologist most nervous about treatment.  "If they > drop below 50, you’re out".  Well, it’s week 5 and they haven’t dropped, > although my RBCs and WBCs have. > David > "ca…@comcast.net" <rollo…@yahoo.com> wrote in message > news:a_udnVSReOMGuj7fRVn-gw@comcast.com… > > Does anyone know how to raise blood platelet levels, without a tranfusion? > > After reading all the success stories  about beating G3, I am eager to get > > treatment. Only problem is – I would need to significantly raise my > > platelet > > count. > > Not so funny but true story: > > One Saturday in August of 2003, I was laying on my couch watching tv with > > my > > 2 sons. I wasn’t feeling very well but didn’t know why. > > Suddenly, it felt as if my throat was closing up. I was having severe > > difficulty breathing, and I couldn’t talk. Using sign language I got my > > eldest son (9 yrs old) to dial 911.

Response:

On Sun, 5 Jun 2005 12:27:17 -0400, "ca…@comcast.net" <rollo…@yahoo.com>, in message ID <a_udnVSReOMGuj7fRVn…@comcast.com>, in the newsgroup alt.support.hepatitis-c wrote: >Does anyone know how to raise blood platelet levels, without a tranfusion? >After reading all the success stories  about beating G3, I am eager to get >treatment. Only problem is – I would need to significantly raise my platelet >count.

There is a drug called oprelvekin or neumega that raises platelet levels.  Apparently it’s not too effective though and can be fairly toxic.  It tends to be used on cancer patients to help with the side effects of their treatment.  It is not normally given to hep-c patients. — Paul Use the reply by email facility in your newsreader to send email

Response:

ca…@comcast.net wrote: > Does anyone know how to raise blood platelet levels, without a tranfusion? > After reading all the success stories  about beating G3, I am eager to get > treatment. Only problem is – I would need to significantly raise my platelet > count. > Not so funny but true story: > One Saturday in August of 2003, I was laying on my couch watching tv with my > 2 sons. I wasn’t feeling very well but didn’t know why. > Suddenly, it felt as if my throat was closing up. I was having severe > difficulty breathing, and I couldn’t talk. Using sign language I got my > eldest son (9 yrs old) to dial 911.

Someone here posted a bit ago that tomatoes raise blood platelet levels. I apologize for not remembering who, but it was one of the lovely ladies. I’ve been craving tomatos and my platelets are low from treatment. HCV genotype 1 Good luck, Mary Ann

Response:

"ca…@comcast.net" <rollo…@yahoo.com> wrote in message

news:a_udnVSReOMGuj7fRVn-gw@comcast.com… > Does anyone know how to raise blood platelet levels, without a tranfusion? > After reading all the success stories  about beating G3, I am eager to get > treatment. Only problem is – I would need to significantly raise my platelet > count.

Believe it or not, my platelet counts kept rising during tx. I started out with a low normal and ended up with a high normal. The doctor told me that this was an unusual reaction to ribavirin, but that it has been documented. He said that the first time he saw a patient who reacted this way, he couldn’t believe his eyes! I had so many rare side effects during tx that it isn’t even funny–and all that on an extremely low dose. God only knows what would have happened if they had given me the standard dose for my body weight. Lana

Response:

Not so funny but true story

Question:

Yeh some emergency room docs are like that.  I went in one night because I felt like I couldn’t breath very well {I’m on a ventilator when I sleep} and the doc sent me home without anything for it telling me I only had post nasal drip and 2 days later  I wound up in the hospital for many weeks with p-neumonia       Doug "ca…@comcast.net" <rollo…@yahoo.com> wrote in message

news:9K-dnZEc-NFNrj7fRVn-rw@comcast.com… – Hide quoted text — Show quoted text -> Not so funny but true story: > One Saturday in August of 2003, I was laying on my couch watching tv with > my > 2 sons. I wasn’t feeling very well but didn’t know why. > Suddenly, it felt as if my throat was closing up. I was having severe > difficulty breathing, and I couldn’t talk. Using sign language I got my > eldest son (9 yrs old) to dial 911. It seemed like it would come and go > every few minutes. > Even though I live about a mile from a Hospital, I asked the ambulance to > take me to the hospital where I worked – about 15 miles away. > The reason was, even though I worked 40 or more hours a week, the hospital > claimed I was a part-time employee. Therefore, I was not eligible for > health > insurance. But if I used their hospital I was entitled to a 20% discount > on > medical services. You know how much it costs to go to the hospital, so 20% > off would help. > At the hospital emergency room, they took my blood pressure, etc., and put > me in a corner in a wheelchair. You see, this was an emergency room at the > Jersey Shore on a Saturday – jammed packed with drunken, damaged tourists. > Only after I insisted on laying on the floor (you know how good a nice > cold > linoleum floor feels when you’re sick) did they decide to treat me. So > they > wheeled me downstairs where the tourists could’nt see me. A doctor from > the > Dental dept. started checking my mouth and asking me questions. By that > time > my throat had stopped closing but I had severe pain in the right side of > my > lower jaw. > The doctor told me I had gingivitis and TMJ (some kind of nerve pain from > grinding your teeth at night). Even though I never have ground my teeth at > night. > Finally they gave me some painkillers and antibiotics and sent me on my > way. > As they were releasing me my wife showed up to take me home. When we were > leaving the emergency room, I had to run for a storm drain to vomit. Only > after we got home and I looked at my legs in the light did I realize there > was blood splashed all over my feet and legs. > Well, I went back to work at my other job on Monday, and told the hospital > after the way I was treated I could only work for them on the weekends > until > they found a replacement. > Every day I started feeling a little weaker, and my stomach started > swelling > up. On Friday, when I came home from work I was so weak my wife insisted > we > go to the hospital near my house. They took my vitals and did a blood > test. > After about 30 minutes they came rushing in my room and told my wife she > would have to wait outside. They proceeded to flip me over and stick a > greased thumb in my butt to check for blood. They flipped me back over and > shoved a tube in my nose and down my throat. They started pumping out alot > of fluid which the doctor told me was undigested blood. He asked me if I > had > been crapping out black rocks. I told him yes, ever since Monday or > Tuesday. > He told me that was digested blood. > They put me in intensive care with transfusions for 3 days. The doctor > told > my wife I would have been dead in less than twelve hours if she didn’t > bring > me to the hospital. > It seems that when my throat felt like it was closing it was because the > veins in my throat were swelling. The pain in my jaw was from blood > pressure > on one side being high from my liver being being clogged or restricted. It > literally almost blew one of my teeth out of the socket! That tooth is > dead > now. While waiting in the emergency room of the hospital where I worked > the > vein in my throat popped, which gave me great relief at the time. > Since then, my health has not really recovered. > Gingivitis and TMJ? > Nice call, Asshole!

Response:

"ca…@comcast.net" <rollo…@yahoo.com> wrote in message

news:9K-dnZEc-NFNrj7fRVn-rw@comcast.com… – Hide quoted text — Show quoted text -> Not so funny but true story: > One Saturday in August of 2003, I was laying on my couch watching tv with > my > 2 sons. I wasn’t feeling very well but didn’t know why. > Suddenly, it felt as if my throat was closing up. I was having severe > difficulty breathing, and I couldn’t talk. Using sign language I got my > eldest son (9 yrs old) to dial 911. It seemed like it would come and go > every few minutes. > Even though I live about a mile from a Hospital, I asked the ambulance to > take me to the hospital where I worked – about 15 miles away. > The reason was, even though I worked 40 or more hours a week, the hospital > claimed I was a part-time employee. Therefore, I was not eligible for > health > insurance. But if I used their hospital I was entitled to a 20% discount > on > medical services. You know how much it costs to go to the hospital, so 20% > off would help. > At the hospital emergency room, they took my blood pressure, etc., and put > me in a corner in a wheelchair. You see, this was an emergency room at the > Jersey Shore on a Saturday – jammed packed with drunken, damaged tourists. > Only after I insisted on laying on the floor (you know how good a nice > cold > linoleum floor feels when you’re sick) did they decide to treat me. So > they > wheeled me downstairs where the tourists could’nt see me. A doctor from > the > Dental dept. started checking my mouth and asking me questions. By that > time > my throat had stopped closing but I had severe pain in the right side of > my > lower jaw. > The doctor told me I had gingivitis and TMJ (some kind of nerve pain from > grinding your teeth at night). Even though I never have ground my teeth at > night. > Finally they gave me some painkillers and antibiotics and sent me on my > way. > As they were releasing me my wife showed up to take me home. When we were > leaving the emergency room, I had to run for a storm drain to vomit. Only > after we got home and I looked at my legs in the light did I realize there > was blood splashed all over my feet and legs. > Well, I went back to work at my other job on Monday, and told the hospital > after the way I was treated I could only work for them on the weekends > until > they found a replacement. > Every day I started feeling a little weaker, and my stomach started > swelling > up. On Friday, when I came home from work I was so weak my wife insisted > we > go to the hospital near my house. They took my vitals and did a blood > test. > After about 30 minutes they came rushing in my room and told my wife she > would have to wait outside. They proceeded to flip me over and stick a > greased thumb in my butt to check for blood. They flipped me back over and > shoved a tube in my nose and down my throat. They started pumping out alot > of fluid which the doctor told me was undigested blood. He asked me if I > had > been crapping out black rocks. I told him yes, ever since Monday or > Tuesday. > He told me that was digested blood. > They put me in intensive care with transfusions for 3 days. The doctor > told > my wife I would have been dead in less than twelve hours if she didn’t > bring > me to the hospital. > It seems that when my throat felt like it was closing it was because the > veins in my throat were swelling. The pain in my jaw was from blood > pressure > on one side being high from my liver being being clogged or restricted. It > literally almost blew one of my teeth out of the socket! That tooth is > dead > now. While waiting in the emergency room of the hospital where I worked > the > vein in my throat popped, which gave me great relief at the time. > Since then, my health has not really recovered. > Gingivitis and TMJ? > Nice call, Asshole!

I don’t understand why the heck they had a dentist checking you.  He would, of course, look for a dental problem.  You needed an internal med doc. at the least, or maybe an Ear Nose Throat doc would have made sense since your throat was closing up.  Those idiots! Susie —-== Posted via Newsfeeds.Com – Unlimited-Uncensored-Secure Usenet News==—- http://www.newsfeeds.com The #1 Newsgroup Service in the World! 120,000+ Newsgroups —-= East and West-Coast Server Farms – Total Privacy via Encryption =—-

Response:

I don’t understand why the heck they had a dentist checking you. Susie ////////// Tooth decay can be pretty serious, ya know.  :-) elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

A friend of mine had his entire left side blown off in an explosion. He’s all right now. Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

Hey Elmo, You think I could make this shit up? <elmoemer…@webtv.net> wrote in message

news:15470-42A45573-166@storefull-3253.bay.webtv.net… – Hide quoted text — Show quoted text -> A friend of mine had his entire left side blown off in an explosion. > He’s all right now. > Elmo > http://community.webtv.net/elmoemerson/DocElmosHepFile > http://community.webtv.net/elmoemerson/TheFamilyAlbum

Response:

 Re: Not so funny but true story   I don’t understand why the heck they had a dentist checking you. He would, of course, look for a dental problem. You needed an internal med doc. at the least, or maybe an Ear Nose Throat doc would have made sense since your throat was closing up. Those idiots! Susie

Activa problems — arrgh

Question:

On Thu, 17 Feb 2005 11:52:54 -0800, "Quick" – Hide quoted text — Show quoted text -<quick7135-n…@NOSPAMyahoo.com> wrote: >I think it comes with pictures. You want to have the straps >loose when you first put it on. Then turn on the blower >(you may want to do this in front of a mirror or with a hand >mirror). Then adjust the straps so that the "bladder/doughnut" >portion is 1/2 inflated.  1/2 way compressed on top, bottom >and both sides. Straps should be tight enough so that >the doughnut isn’t all the way extended and not so tight so >that the doughnut is all the way compressed. There is a good >bit of "travel" room there so even if you adjusted it to the >midway point while standing or sitting up it still should be >ok when lying down.  With the bladder half way compressed >it serves to isolate the frame from the seal portion on your >face and allows a good bit of independent movement of the >two portions. This bladder portion will sort of "breathe" with >you slightly expanding and contracting (some find this a >bit distracting at first). >Once adjusted, as with most interfaces, you shouldn’t have >to do it every time you take it off and put it on again. >-Quick

That’s pretty much my experience with this mask. Basically, adjust the top headband strap so the the two pads fit comfortably on the forehead. As Quick says, the intent is to get the doughnut part of the cushion at about half its compression range when the mask is on the face and under pressure.  It should be even top and bottom as well, so adjusting the angle of the support is important too. With a combination of the angle adjustment and lower straps it’s possible to get the cushion to the correct inflation.  Without inflation, the straps will be loose and this is normal. Two other comments for the OP: 1) If the cushion still feels to be the wrong size after a couple of days, I would ask for another size – there are three or four.   I had two that would have worked OK and one was a bit better than the other. 2) If you are congested, any nasal mask is going to have problems so I would wait until that clears up before changing too many other things. — .andy To email, substitute .nospam with .gl

Response:

- Hide quoted text — Show quoted text -sine nomine wrote: > i went to the dme yesterday and got an activa (and got to keep the > adam as well). i was really optimistic about it, but last night > sucked. i was exhausted this morning and had to fight really hard to > stay awake on the drive in to work. > I was in and out of sleep all night. i vaguely remember at some point > my chin strap slipping and mouth-breathing. before i went to sleep, i > had a hard time breathing through the mask. i was pretty congested > last night and didn’t use saline or decongestants before going to > sleep, but i don’t know if that congestion would account for the > problems i had. i was pretty paranoid about the seal, and it seemed to > be okay before i went to sleep but i think it was leaking at night. > i didn’t tighten it down much because the respiratory therapist said > that would be bad. i’ve got the shallow mask because my nose bridge is > nearly non-existent and my upper lip seems to be a bit short for the > mask. (i also have a very small mouth; for a fat chick, i’ve got a > small face. > so how can i make this work? it’s way more comfortable than the > pillows and it doesn’t hurt my poor wounded nose. but that doesn’t > really matter if i keep having nights like last night. help?

See the following for fitting instructions: http://resmed.com/Shared/StaticFiles/mirage-activa-nm/mirage-activa-n…

Response:

sine nomine <ll…@drizzle.com> wrote: >I was in and out of sleep all night. i vaguely remember at some point >my chin strap slipping and mouth-breathing. before i went to sleep, i >had a hard time breathing through the mask. i was pretty congested >last night and didn’t use saline or decongestants before going to >sleep, but i don’t know if that congestion would account for the >problems i had.

That pretty much parallels my experience with a conventional nasal mask during titration. I was a little stuffy (this was before a heated humidifier unclogged me) and my nostrils would close up when I tried to inhale. Both nasal pillows and a full-face mask worked fine. >so how can i make this work? it’s way more comfortable than the >pillows and it doesn’t hurt my poor wounded nose. but that doesn’t >really matter if i keep having nights like last night. help?

Others will offer suggestions on the mask, so I’ll just keep harping on the need for sufficient humidity. Turn it up! Tom

Response:

Andy Hall wrote:

: As Quick says, the intent is to get the doughnut part of the cushion : at about half its compression range when the mask is on the face and : under pressure.  It should be even top and bottom as well, so : adjusting the angle of the support is important too. : With a combination of the angle adjustment and lower straps it’s : possible to get the cushion to the correct inflation.  Without : inflation, the straps will be loose and this is normal. thank both of you! last night wasn’t great but it was way way better than the night before. i think i can fine-tune it a bit, but the improvement is immense. i’ve noticed that it’s much harder to talk with it on than with the pillows. : 1) If the cushion still feels to be the wrong size after a couple of : days, I would ask for another size – there are three or four.   I had : two that would have worked OK and one was a bit better than the other. is there a size smaller than shallow? i got a tighter seal last night by following the instructions i got here and wearing it further down under my nose (almost to the upper lip but not quite). interestingly, i found out that the mask used at titration was a peds mask. not sure what to make of that. : 2) If you are congested, any nasal mask is going to have problems so I : would wait until that clears up before changing too many other things. taking a dose of sudafed an hour or two before bedtime helped a lot. i have major allergies, so waiting for it to clear up might take a while. — deb the trees and flowers hate me

Response:

On Fri, 18 Feb 2005 19:48:41 -0000, sine nomine <ll…@drizzle.com> wrote: >Andy Hall wrote: >: As Quick says, the intent is to get the doughnut part of the cushion >: at about half its compression range when the mask is on the face and >: under pressure.  It should be even top and bottom as well, so >: adjusting the angle of the support is important too. >: With a combination of the angle adjustment and lower straps it’s >: possible to get the cushion to the correct inflation.  Without >: inflation, the straps will be loose and this is normal. >thank both of you! last night wasn’t great but it was way way better >than the night before. i think i can fine-tune it a bit, but the >improvement is immense. i’ve noticed that it’s much harder to talk >with it on than with the pillows.

Mmmm.. Basically you can forget it >: 1) If the cushion still feels to be the wrong size after a couple of >: days, I would ask for another size – there are three or four.   I had >: two that would have worked OK and one was a bit better than the other. >is there a size smaller than shallow? i got a tighter seal last night >by following the instructions i got here and wearing it further down >under my nose (almost to the upper lip but not quite). interestingly, >i found out that the mask used at titration was a peds mask. not sure >what to make of that.

Shallow is the smallest as far as I am aware.   The size is both the depth and area on the face.    I believe I have the middle size.  At any rate, yes the seal does go quite a long way down  towards the lip. With the smaller one my nose was touching the back of the mask and you don’t want that.   It’s worth asking ResMed, though.  They may make something smaller. >: 2) If you are congested, any nasal mask is going to have problems so I >: would wait until that clears up before changing too many other things. >taking a dose of sudafed an hour or two before bedtime helped a lot. i >have major allergies, so waiting for it to clear up might take a >while.

I’ve always found it best to deal with one thing at a time rather than changing everything and never finding the problem. For some CPAP machines there are HEPA filters so you could look at that.   Generally Sudafed and other medicines of its type (pseudoephedrine etc) are not considered to be a good long term option for allergies and sinus problems.    If it looks like this will be a perennial problem then it would be best to talk to the doctor about it if you haven’t already. Really with any nasal mask or pillows you need to have the nasal passages reasonably clear or it will be a bit miserable, and it’s better to try to get that resolved and then deal with the mask. Have you tried nasal saline rinses?   Generally this is an innoccuous treatment and may be a help… — .andy To email, substitute .nospam with .gl

Response:

- Hide quoted text — Show quoted text -Andy Hall wrote: > On Fri, 18 Feb 2005 19:48:41 -0000, sine nomine > <ll…@drizzle.com> wrote: >> Andy Hall wrote: >>> As Quick says, the intent is to get the doughnut part >>> of the cushion at about half its compression range when >>> the mask is on the face and under pressure.  It should >>> be even top and bottom as well, so adjusting the angle >>> of the support is important too. >>> With a combination of the angle adjustment and lower >>> straps it’s possible to get the cushion to the correct >>> inflation.  Without inflation, the straps will be loose >>> and this is normal. >> thank both of you! last night wasn’t great but it was >> way way better than the night before. i think i can >> fine-tune it a bit, but the improvement is immense. i’ve >> noticed that it’s much harder to talk with it on than >> with the pillows. > Mmmm.. Basically you can forget it >>> 1) If the cushion still feels to be the wrong size >>> after a couple of days, I would ask for another size – >>> there are three or four.   I had two that would have >>> worked OK and one was a bit better than the other. >> is there a size smaller than shallow? i got a tighter >> seal last night by following the instructions i got here >> and wearing it further down under my nose (almost to the >> upper lip but not quite). interestingly, i found out >> that the mask used at titration was a peds mask. not >> sure what to make of that. > Shallow is the smallest as far as I am aware.   The size > is both the depth and area on the face.    I believe I > have the middle size.  At any rate, yes the seal does go > quite a long way down  towards the lip. With the smaller > one my nose was touching the back of the mask and you > don’t want that.   It’s worth asking ResMed, though. > They may make something smaller. >>> 2) If you are congested, any nasal mask is going to >>> have problems so I would wait until that clears up >>> before changing too many other things. >> taking a dose of sudafed an hour or two before bedtime >> helped a lot. i have major allergies, so waiting for it >> to clear up might take a while. > I’ve always found it best to deal with one thing at a > time rather than changing everything and never finding > the problem. > For some CPAP machines there are HEPA filters so you > could look at that.   Generally Sudafed and other > medicines of its type (pseudoephedrine etc) are not > considered to be a good long term option for allergies > and sinus problems.    If it looks like this will be a > perennial problem then it would be best to talk to the > doctor about it if you haven’t already. > Really with any nasal mask or pillows you need to have > the nasal passages reasonably clear or it will be a bit > miserable, and it’s better to try to get that resolved > and then deal with the mask. > Have you tried nasal saline rinses?   Generally this is > an innoccuous treatment and may be a help…

I’ve found on the infrequent occassions that I’ve been congested (plugged nose) that I only need to get it open enough so that I can breathe enough to get to sleep.  Even if it’s only 1 nostril or a bit less. If I can do that I’ve always found that the heated humidifier (humidity) takes care of the rest and I wake up absolutely clear.  Unfortunately if it’s due to a cold or something that’s still there I’ll plug up again a while after getting up… -Quick

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I have the Activa and find that it is the best mask for me.  However, I have found that I have to put the chinstrap on first so that the activa seal can inflate and work as designed. "sine nomine" <ll…@drizzle.com> wrote in message

news:1108668722.757736@yasure… – Hide quoted text — Show quoted text ->i went to the dme yesterday and got an activa (and got to keep the > adam as well). i was really optimistic about it, but last night > sucked. i was exhausted this morning and had to fight really hard to > stay awake on the drive in to work. > I was in and out of sleep all night. i vaguely remember at some point > my chin strap slipping and mouth-breathing. before i went to sleep, i > had a hard time breathing through the mask. i was pretty congested > last night and didn’t use saline or decongestants before going to > sleep, but i don’t know if that congestion would account for the > problems i had. i was pretty paranoid about the seal, and it seemed to > be okay before i went to sleep but i think it was leaking at night. > i didn’t tighten it down much because the respiratory therapist said > that would be bad. i’ve got the shallow mask because my nose bridge is > nearly non-existent and my upper lip seems to be a bit short for the > mask. (i also have a very small mouth; for a fat chick, i’ve got a > small face. > so how can i make this work? it’s way more comfortable than the > pillows and it doesn’t hurt my poor wounded nose. but that doesn’t > really matter if i keep having nights like last night. help? > — > deb > wondering if anyone ever finds > the perfect mask

Response:

Andy Hall wrote:

: >i’ve noticed that it’s much harder to talk : >with it on than with the pillows. : Mmmm.. Basically you can forget it yes, i am rapidly becoming proficient at sign language for such essential phrases as "the cats are tromping all over you because you forgot to feed them." : any rate, yes the seal does go quite a long way down  towards the lip. : With the smaller one my nose was touching the back of the mask and you : don’t want that. i had a much better time of it last night (though i had to get up early to work for a colleague today so i didn’t get much sleep). i stayed up too late, but slept straight through and only woke up because my boy poked me and told me it was time to get up and get to work. so i think it’s better. as several peopel predicted, it took a lot of tweaking but i think i have it down now. i hope. : For some CPAP machines there are HEPA filters so you could look at : that.   Generally Sudafed and other medicines of its type : (pseudoephedrine etc) are not considered to be a good long term option : for allergies and sinus problems.    If it looks like this will be a : perennial problem then it would be best to talk to the doctor about it : if you haven’t already. i think i need to go back to my nasal spray stuff (nasacort or something like that). i’ve got a hepa filter, which is nice because i no longer wake up in the morning and produce enough mucus to, well… you know any ending of that sentence is just going to be bad. — deb i hate the trees, too. at least some days.

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Diamond Cutter wrote:

: I have the Activa and find that it is the best mask for me.  However, I have : found that I have to put the chinstrap on first so that the activa seal can : inflate and work as designed. that’s a good idea. i’ll have to try it tonight. — deb never again will i work on a saturday. no matter how good an excuse someone has.

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sine nomine <ll…@drizzle.com> wrote: >: 2) If you are congested, any nasal mask is going to have problems so I >: would wait until that clears up before changing too many other things. >taking a dose of sudafed an hour or two before bedtime helped a lot. i >have major allergies, so waiting for it to clear up might take a >while.

You might want to try an antihistamine. Diphenhydramine hydrochloride (generic Benadryl) will also make you sleepy, a handy side effect at times. Tom

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Sudafed contains a stimulant.  Not what I need at  bedtime. Actifed  is similar but without the stimulant.

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On Mon, 21 Feb 2005 22:46:12 GMT, ralph.junghe…@verizon.net wrote: >Sudafed contains a stimulant.   >Actifed  is similar but without the stimulant.

Not quite. Actifed is a chemical superset of Sudafed, they both contain pseudoephedrine. What Actifed contains that Sudafed doesn’t is an antihistamine that can be rather sedating.

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Tom Devlin wrote:

: You might want to try an antihistamine. Diphenhydramine hydrochloride : (generic Benadryl) will also make you sleepy, a handy side effect at : times. i usually take tavist. i’ve been on zyrtec in the past but let my script expire. benadryl really really knocks me out, and the worst episodes of sleep paralysis/hallucinations i’ve had were when i was using it very heavily. fortunately, sudafed doesn’t keep me awake. it’s probably because of the massive doses of caffeine and ephedrine and guarana i was using to keep myself awake enough to function. — deb who used to have a quad latte and 2-4 pieces of caffeine gum in the car then 25 mg of ephedrine at work every day

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sine nomine <ll…@drizzle.com> wrote: >: You might want to try an antihistamine. Diphenhydramine hydrochloride >: (generic Benadryl) will also make you sleepy, a handy side effect at >i usually take tavist. i’ve been on zyrtec in the past but let my >script expire.

Ok, I see that I’m a real innocent about antihistamines. <g> >benadryl really knocks me out, and the worst >episodes of sleep paralysis/hallucinations i’ve had were when i was >using it very heavily.

How much were you taking?  I’ve never taken more than three Benadryl a day, and that was really unusual (too much shellfish and a bit of stress), but the only unintended side effect was to make me sleepy. Tom

Response:

Tom Devlin wrote:

: Ok, I see that I’m a real innocent about antihistamines. <g> you just haven’t had the trees attack you for years and years. my pcp finally had me try a bunch of different meds to see what worked best. i think because he was running out of tissues in his office every time i visited. : How much were you taking?  I’ve never taken more than three Benadryl a : day, and that was really unusual (too much shellfish and a bit of : stress), but the only unintended side effect was to make me sleepy. back when i was young, stupid, and highly stressed, i used it as a sort of tranq substitute. i took 3 or 4 at a time. one night, i took six and later had the worst sleep paralysis episode of my life. i kept thinking that i’d struggled out of it at last only to be caught in another layer of hallucinations and the whole freaky sleep paralysis thing. i think i’ve taken benadryl maybe twice since then. — deb correlation is not causation, but why take chances?

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sine nomine <ll…@drizzle.com> wrote: >: Ok, I see that I’m a real innocent about antihistamines. <g> >you just haven’t had the trees attack you for years and years.

Depends on their methods, they used to drop me off higher branches rather consistently during my formative years. Fortunately, I usually managed to land on my head… >back when i was young, stupid, and highly stressed,

Those conditions are often synonymous. <g> >i used it as a >sort of tranq substitute. i took 3 or 4 at a time. one night, i took >six and later had the worst sleep paralysis episode of my life.

I don’t know if you’re still troubled by sleep paralysis, but many people are able to break out of an episode by flicking their eyes (often the only thing they have conscious control over) back and forth rapidly. >thing. i think i’ve taken benadryl maybe twice since then.

Can’t say that I blame you. Tom

Response:

Tom Devlin wrote:

: I don’t know if you’re still troubled by sleep paralysis, but many : people are able to break out of an episode by flicking their eyes : (often the only thing they have conscious control over) back and forth : rapidly. i’m generally not conscious of being conscious; i always have hallucinations, usually that i’m having a heart attack or suffocating. it’s very weird — i have that happen, then i realize it’s another episode and .. the only way i can describe it is that i *wrench* myself awake. then i lie there breathing heavily for a while. it’s not like a dream — it’s very very real-seeming. i don’t have them very often anymore, maybe once every couple of months. this is a good thing, or i’d stop sleeping. — deb "I’ll sleep when I’m dead." — warren zevon

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sine nomine <ll…@drizzle.com> wrote: >: I don’t know if you’re still troubled by sleep paralysis, but many >: people are able to break out of an episode by flicking their eyes >: (often the only thing they have conscious control over) back and forth >: rapidly. >i’m generally not conscious of being conscious; i always have >hallucinations, usually that i’m having a heart attack or >suffocating. it’s very weird — i have that happen, then i realize >it’s another episode and .. the only way i can describe it is that i >*wrench* myself awake. then i lie there breathing heavily for a >while. it’s not like a dream — it’s very very real-seeming.

Were these more common before CPAP?  They sound like very real apneic episodes. >i don’t have them very often anymore, maybe once every couple of >months. this is a good thing, or i’d stop sleeping.

Have you had any since starting CPAP?  If so, I’d be interested in learning if they continue to decrease as you get the mask leaks under control. Tom

Response:

sine nomine <ll…@drizzle.com> wrote: >: Were these more common before CPAP?  They sound like very real apneic >: episodes. >i don’t know, to be honest. i haven’t had any for about six >months. i’ve been having them since i was about 15. it’s interesting >to think they could be apneic (though i have had other experiences >that i’m really sure were related to apnea).

I’d almost bet on the suffocating one, especially when you were "breathing heavily" afterwards. We know that a laboring heart produces a hormone that makes us to want to urinate, maybe you sensed the root cause? >: Have you had any since starting CPAP?  If so, I’d be interested in >no, but last night i had a major panic attack after i put the mask >on. bad enough that i had to take it off until i stopped freaking >out.

I hesitate to suggest medications to you, you always seem so far ahead of me, but Xanax takes care of my occasional "rough spots". >then i tried the nasal pillows again and that was no fun either.

No one solution works for everybody. I’ve had fantastic success with nasal pillows, but that doesn’t mean that you have to like them. Tom

Response:

Tom Devlin wrote:

: Were these more common before CPAP?  They sound like very real apneic : episodes. i don’t know, to be honest. i haven’t had any for about six months. i’ve been having them since i was about 15. it’s interesting to think they could be apneic (though i have had other experiences that i’m really sure were related to apnea). : Have you had any since starting CPAP?  If so, I’d be interested in : learning if they continue to decrease as you get the mask leaks under : control. no, but last night i had a major panic attack after i put the mask on. bad enough that i had to take it off until i stopped freaking out. then i tried the nasal pillows again and that was no fun either. — deb beginning to understand why compliance is an issue.

Response:

- Hide quoted text — Show quoted text -sine nomine wrote: > i went to the dme yesterday and got an activa (and got to > keep the adam as well). i was really optimistic about it, > but last night sucked. i was exhausted this morning and > had to fight really hard to stay awake on the drive in to > work. > I was in and out of sleep all night. i vaguely remember > at some point my chin strap slipping and mouth-breathing. > before i went to sleep, i had a hard time breathing > through the mask. i was pretty congested last night and > didn’t use saline or decongestants before going to sleep, > but i don’t know if that congestion would account for the > problems i had. i was pretty paranoid about the seal, and > it seemed to be okay before i went to sleep but i think > it was leaking at night. > i didn’t tighten it down much because the respiratory > therapist said that would be bad. i’ve got the shallow > mask because my nose bridge is nearly non-existent and my > upper lip seems to be a bit short for the mask. (i also > have a very small mouth; for a fat chick, i’ve got a > small face. > so how can i make this work? it’s way more comfortable > than the pillows and it doesn’t hurt my poor wounded > nose. but that doesn’t really matter if i keep having > nights like last night. help?

I think it comes with pictures. You want to have the straps loose when you first put it on. Then turn on the blower (you may want to do this in front of a mirror or with a hand mirror). Then adjust the straps so that the "bladder/doughnut" portion is 1/2 inflated.  1/2 way compressed on top, bottom and both sides. Straps should be tight enough so that the doughnut isn’t all the way extended and not so tight so that the doughnut is all the way compressed. There is a good bit of "travel" room there so even if you adjusted it to the midway point while standing or sitting up it still should be ok when lying down.  With the bladder half way compressed it serves to isolate the frame from the seal portion on your face and allows a good bit of independent movement of the two portions. This bladder portion will sort of "breathe" with you slightly expanding and contracting (some find this a bit distracting at first). Once adjusted, as with most interfaces, you shouldn’t have to do it every time you take it off and put it on again. -Quick

Response:

i went to the dme yesterday and got an activa (and got to keep the adam as well). i was really optimistic about it, but last night sucked. i was exhausted this morning and had to fight really hard to stay awake on the drive in to work. I was in and out of sleep all night. i vaguely remember at some point my chin strap slipping and mouth-breathing. before i went to sleep, i had a hard time breathing through the mask. i was pretty congested last night and didn’t use saline or decongestants before going to sleep, but i don’t know if that congestion would account for the problems i had. i was pretty paranoid about the seal, and it seemed to be okay before i went to sleep but i think it was leaking at night. i didn’t tighten it down much because the respiratory therapist said that would be bad. i’ve got the shallow mask because my nose bridge is nearly non-existent and my upper lip seems to be a bit short for the mask. (i also have a very small mouth; for a fat chick, i’ve got a small face. so how can i make this work? it’s way more comfortable than the pillows and it doesn’t hurt my poor wounded nose. but that doesn’t really matter if i keep having nights like last night. help? — deb wondering if anyone ever finds the perfect mask

Response:

Seller's Assistant rip-off

Question:

I am being charged for Seller’s Assistant Basic Subscription Fee, although I uninstalled the software shortly after getting it (because the software went into an infinite CPU loop every time it started… and for other reasons: it basically just sucks.) I’ve looked, but I don’t see how the heck I tell ebay that I don’t use it. Ideas?

Response:

I am being charged for Seller’s Assistant Basic Subscription Fee, although I uninstalled the software shortly after getting it (because the software went into an infinite CPU loop every time it started… and for other reasons: it basically just sucks.) I’ve looked, but I don’t see how the heck I tell ebay that I don’t use it. Ideas?

Same place where you subscribed. http://cgi3.ebay.com/ws/eBayISAPI.dll?SubscriptionLogin

Response:

jjs said I am being charged for Seller’s Assistant Basic Subscription Fee, although I uninstalled the software shortly after getting it (because the software went into an infinite CPU loop every time it started… and for other reasons: it basically just sucks.) I’ve looked, but I don’t see how the heck I tell ebay that I don’t use it. Ideas?

Go to MyEbay and then   My Account Seller Subscriptions It is near the bottom of the left hand panel.

Response:

and sputtered, and managed to choke out these words: I’ve looked, but I don’t see how the heck I tell ebay that I don’t use it. Ideas?

call them?

Response:

I’ve looked, but I don’t see how the heck I tell ebay that I don’t use it. Ideas? Same place where you subscribed. http://cgi3.ebay.com/ws/eBayISAPI.dll?SubscriptionLogin

Gosh is my face red. Thanks, BrotherBart.

Response:

call them?

ASL guy here.

Response:

and sputtered, and managed to choke out these words: call them? ASL guy here.

Age Sex Location?

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and sputtered, and managed to choke out these words: call them? ASL guy here. Age Sex Location?

American Sign Language. Kris

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choke out these words: – Hide quoted text — Show quoted text – and sputtered, and managed to choke out these words: call them? ASL guy here. Age Sex Location? American Sign Language.

thanks.  :)

Response:

something like: call them? ASL guy here.

Does your state have a relay service?  Here in NC there’s an 800 number you can phone, and you type in what you want to say and a hearing person on the other end will relay it verbally to the person you need to call voice.  (There’s a reverse service for a hearing person to use if they want to phone you.) -Bertha — "The blues isn’t about feeling better…it’s about making other people feel worse."                                            – "Bleeding Gums" Murphy

Response:

who starts your day

Question:

i don’t have any answers to your questions, but i like listening to you ramble. often the lils wake up first here.  not always, though.  if we’re having trouble waking up, they’re out first.  like, a kid’s in charge of the body right now, even though i’m awake n talking.  (usually Thomas is in charge of the body) ah sleepy, n wan go bakka cuddow wiff dava. bigs eat chocklat n maybe sposta go zing! n waka us up.  denna wan sleeeeeeep.  :) hihi, nicky!  :) jt (a guy, n den denna )

It’s funny Celeste would make a post about dreaming

because I wanted to talk about it a similar aspect of being multiple: waking. 99% of the time it’s Luthe that gets up first. Probably

because our SO wakes – Hide quoted text — Show quoted text – us up and… But every once in a while, even sometimes when our SO gets us up, it is me that wakes up first. It’s hard for me to describe the importance of those days. The days I get up first seem more wholly mine then the others. It’s not that I’m the only one "out" during those days, because the others are "out" almost as much as usual, it’s that I get to be out more often, more easily, and when I am it’s more solely, wholly, genuinely *me*. Why is it easier for Luthe to be out than it is for me? Why is it that when he is out he’s more… I can’t find the words…he’s more out by himself, selfsufficient, alone… confident in himself…unaware of me or the others? And contrariwise why is it that I

can’t get time out so easily and when I do it’s hardly ever "just me"? On the movie Sybil, Vicky is out and she is talking to Dr Wilbur and Dr Wilbur asks her about the others and she says, "I can see them now. Oh, I don’t want to. It was so much nicer when it was just you and me." Why can I always "see" Luthe and he never, ever "sees" me? I really like it when I do get to be out for long times and it’s just me all by myself. Sometimes I think that because I’m more out when things

are "safer", meaning nobody is around, that it means I am the "core

personaility" and Luthe is – Hide quoted text — Show quoted text – the alter. Wouldn’t that be a humbling experience for him? <grin ramble ramble ramble nicky — For more information about this posting service, contact: If you want an anonymous account, visit our sign-up page: https://asarian-host.net/cgi-bin/signup.cgi

Response:

It’s funny Celeste would make a post about dreaming because I wanted to talk about it a similar aspect of being multiple: waking. 99% of the time it’s Luthe that gets up first. Probably because our SO wakes us up and… But every once in a while, even sometimes when our SO gets us up, it is me that wakes up first. It’s hard for me to describe the importance of those days. The days I get up first seem more wholly mine then the others. It’s not that I’m the only one "out" during those days, because the others are "out" almost as much as usual, it’s that I get to be out more often, more easily, and when I am it’s more solely, wholly, genuinely *me*. Why is it easier for Luthe to be out than it is for me? Why is it that when he is out he’s more… I can’t find the words…he’s more out by himself, selfsufficient, alone… confident in himself…unaware of me or the others? And contrariwise why is it that I can’t get time out so easily and when I do it’s hardly ever "just me"? On the movie Sybil, Vicky is out and she is talking to Dr Wilbur and Dr Wilbur asks her about the others and she says, "I can see them now. Oh, I don’t want to. It was so much nicer when it was just you and me." Why can I always "see" Luthe and he never, ever "sees" me? I really like it when I do get to be out for long times and it’s just me all by myself. Sometimes I think that because I’m more out when things are "safer", meaning nobody is around, that it means I am the "core personaility" and Luthe is the alter. Wouldn’t that be a humbling experience for him? <grin ramble ramble ramble nicky — For more information about this posting service, contact: If you want an anonymous account, visit our sign-up page: https://asarian-host.net/cgi-bin/signup.cgi

Response:

hi nicky interesting post )) luthe schrieb: It’s funny Celeste would make a post about dreaming because I wanted to talk about it a similar aspect of being multiple: waking.

hehe and I might add somethin which was really weird for me: last tuesday I had a nightmare. and not only did _I_ wake up from it (ususally if somebody has a nightmare somebody else will wake up and then wake the one up who has the nightmare), I also remembered how I fell asleep. somethin I really rarely do … and I dont think I ever did "the whole thing" – fallin asleep, dream, wake up – myself _and_ notice it. *hm* 99% of the time it’s Luthe that gets up first. Probably because our SO wakes us up and… But every once in a while, even sometimes when our SO gets us up, it is me that wakes up first. It’s hard for me to describe the importance of those days. The days I get up first seem more wholly mine then the others. It’s not that I’m the only one "out" during those days, because the others are "out" almost as much as usual, it’s that I get to be out more often, more easily, and when I am it’s more solely, wholly, genuinely *me*.

I know there are ways to train how to remember your dreams i.e. to do stuff more consciously. so maybe there’s a way to train how to wake up, notice it and stick with it? like … usually I’m not the one who gets up. I might wake up due to the first alarm (we need two or three of them) and if I need to go to the toilette, I do it and turn on the heating system on my way back to bed. and then I’ll fall asleep again and most of the time I simply notice half asleep how others get up and do stuff. usually, I’ll wake up for real once the yoga’s done, the tea is finished and get the first coffee ready for me. *grin* but like when I had to take those sign language tests for the usses, I tried to get up with the others or even be the one who wakes up & gets up. Why is it easier for Luthe to be out than it is for me?

routine? him believing he’s the only one anyway and the SO bein his SO, etc.? Why is it that when he is out he’s more… I can’t find the words…he’s more out by himself, selfsufficient, alone… confident in himself…unaware of me or the others? And contrariwise why is it that I can’t get time out so easily and when I do it’s hardly ever "just me"? On the movie Sybil, Vicky is out and she is talking to Dr Wilbur and Dr Wilbur asks her about the others and she says, "I can see them now. Oh, I don’t want to. It was so much nicer when it was just you and me." Why can I always "see" Luthe and he never, ever "sees" me? I really like it when I do get to be out for long times and it’s just me all by myself.

sure. that’s cool )) (esp. as I tend to get more mail from you then *hugegrin*) as for luthe not seeing you … well he still cant take in the fact you’re many so I’d say that’s the reason why. and vice versa – only because he can manage not to see you nor the others on a regular basis he also can cling to the idea "he’s the only one". Sometimes I think that because I’m more out when things are "safer", meaning nobody is around, that it means I am the "core personaility" and Luthe is the alter. Wouldn’t that be a humbling experience for him? <grin

hehe. actualy, the SO might really play a big role here. I guess that’s another reason for us to get up earlier than our SO – for some folks in this bunch, it would be too close otherwise. not that they dont like him or that he isnt safe, quite the contrary, but … some folks are just shy. ) though, of course, the same might be true for "core personalities". yet … if we have somebody like this (which we dunno and doubt more than half of the time) it would be lil and she’s very hum un-shy. )) punk – Hide quoted text — Show quoted text – ramble ramble ramble nicky — For more information about this posting service, contact: If you want an anonymous account, visit our sign-up page: https://asarian-host.net/cgi-bin/signup.cgi

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Sara used to always be the one to wake up in the morning. Very efficient that Fortunately I still have enough of her traits to get me out of bed ‘properly’ in the morning or else it would take too long. She was the type to just be AWAKE and UP. Not a morning person per say, just really… efficient Once things started changing and such here others of us would wake up in the morning but that never worked as well. But everything was in such a state of flux by then that it wasn’t any weirder than the rest of the day Rainbow Colors (Jill) – Hide quoted text — Show quoted text – i don’t have any answers to your questions, but i like listening to you ramble. often the lils wake up first here.  not always, though.  if we’re having trouble waking up, they’re out first.  like, a kid’s in charge of the body right now, even though i’m awake n talking.  (usually Thomas is in charge of the body) ah sleepy, n wan go bakka cuddow wiff dava. bigs eat chocklat n maybe sposta go zing! n waka us up.  denna wan sleeeeeeep.  :) hihi, nicky!  :) jt (a guy, n den denna ) It’s funny Celeste would make a post about dreaming because I wanted to talk about it a similar aspect of being multiple: waking. 99% of the time it’s Luthe that gets up first. Probably because our SO wakes us up and… But every once in a while, even sometimes when our SO gets us up, it is me that wakes up first. It’s hard for me to describe the importance of those days. The days I get up first seem more wholly mine then the others. It’s not that I’m the only one "out" during those days, because the others are "out" almost as much as usual, it’s that I get to be out more often, more easily, and when I am it’s more solely, wholly, genuinely *me*. Why is it easier for Luthe to be out than it is for me? Why is it that when he is out he’s more… I can’t find the words…he’s more out by himself, selfsufficient, alone… confident in himself…unaware of me or the others? And contrariwise why is it that I can’t get time out so easily and when I do it’s hardly ever "just me"? On the movie Sybil, Vicky is out and she is talking to Dr Wilbur and Dr Wilbur asks her about the others and she says, "I can see them now. Oh, I don’t want to. It was so much nicer when it was just you and me." Why can I always "see" Luthe and he never, ever "sees" me? I really like it when I do get to be out for long times and it’s just me all by myself. Sometimes I think that because I’m more out when things are "safer", meaning nobody is around, that it means I am the "core personaility" and Luthe is the alter. Wouldn’t that be a humbling experience for him? <grin ramble ramble ramble nicky — For more information about this posting service, contact: If you want an anonymous account, visit our sign-up page: https://asarian-host.net/cgi-bin/signup.cgi

–      The colors blend, the edges soften. Swirling and mixing                    we are becoming white light.

Response:

It’s funny Celeste would make a post about dreaming because I wanted to talk about it a similar aspect of being multiple: waking.

heheh  and rite now for me makes a good distracton from thinkin heavy things that i cant quite get outta my skull. – Hide quoted text — Show quoted text – 99% of the time it’s Luthe that gets up first. Probably because our SO wakes us up and… But every once in a while, even sometimes when our SO gets us up, it is me that wakes up first. It’s hard for me to describe the importance of those days. The days I get up first seem more wholly mine then the others. It’s not that I’m the only one "out" during those days, because the others are "out" almost as much as usual, it’s that I get to be out more often, more easily, and when I am it’s more solely, wholly, genuinely *me*. Why is it easier for Luthe to be out than it is for me?

id say rutine to, cos tis much the same here.  frankie usuly is the one to get up. BUT, if we have a change to the days rutine, baby will usuly beat her.  I v v rarely wake up first, n if for some reson its important that I wake up first ie. when ive had rships n others dont get on so well, we often get this v wierd thing, were others will of woken up, for some reson often laura, n will have just gone into a transe n frozen up til I come n save the day *rolls eyes*, wich i find v v freaky, cos it takes somhow a v big swich to swop over then, n ill find myself then in lauras transe n i cant move or get up.  thinkin bout this more, cos this very thing hapend just yesterdy, tho v randomly as it wasnt a day i had to be up first, n i was just stuck there thinkin ‘erm, i realy wanna get up.  i wanna get outta bed, like now!  i still cant move, argh!’  v anoying. but in genral, the answer is rarly me up first.  but then im still mentaly stuck in teenage days, n refusal to wake up is still very much there *G*. Why is it that when he is out he’s more… I can’t find the words…he’s more out by himself, selfsufficient, alone… confident in himself…unaware of me or the others? And contrariwise why is it that I can’t get time out so easily and when I do it’s hardly ever "just me"? On the movie Sybil, Vicky is out and she is talking to Dr Wilbur and Dr Wilbur asks her about the others and she says, "I can see them now. Oh, I don’t want to. It was so much nicer when it was just you and me." Why can I always "see" Luthe and he never, ever "sees" me? I really like it when I do get to be out for long times and it’s just me all by myself.

oh yes, defnitly, i like that to, karen is an exepton, im just as happy when its just me n karen. Sometimes I think that because I’m more out when things are "safer", meaning nobody is around, that it means I am the "core personaility" and Luthe is the alter. Wouldn’t that be a humbling experience for him? <grin

heheh i like your thinkin ramble ramble ramble

and more rambles from me C. – Hide quoted text — Show quoted text – nicky — For more information about this posting service, contact: If you want an anonymous account, visit our sign-up page: https://asarian-host.net/cgi-bin/signup.cgi

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– Hide quoted text — Show quoted text – It’s funny Celeste would make a post about dreaming because I wanted to talk about it a similar aspect of being multiple: waking. heheh  and rite now for me makes a good distracton from thinkin heavy things that i cant quite get outta my skull. 99% of the time it’s Luthe that gets up first. Probably because our SO wakes us up and… But every once in a while, even sometimes when our SO

gets us up, it is me – Hide quoted text — Show quoted text – that wakes up first. It’s hard for me to describe the importance of those days. The days I get up first seem more wholly mine then the others. It’s not that I’m the only one "out" during those days, because the others are "out" almost as much as usual, it’s that I get to be out more often, more easily, and when I am it’s more solely, wholly, genuinely *me*. Why is it easier for Luthe to be out than it is for me? id say rutine to, cos tis much the same here.  frankie usuly is the one to get up. BUT, if we have a change to the days rutine, baby will usuly beat her.  I v v rarely wake up first, n if for some reson its important that I wake up first ie. when ive had rships n others dont get on so well, we often get this v wierd thing, were others will of woken up, for some reson often laura, n will have just gone into a transe n frozen up til I come n save the day *rolls eyes*, wich i find v v freaky, cos it takes somhow a v big swich to swop over then, n ill find myself then in lauras transe n i cant move or get up.  thinkin bout this more, cos this very thing hapend

just yesterdy, tho v – Hide quoted text — Show quoted text – randomly as it wasnt a day i had to be up first, n i was just stuck there thinkin ‘erm, i realy wanna get up.  i wanna get outta bed, like now!  i still cant move, argh!’  v anoying. but in genral, the answer is rarly me up first.  but then im still mentaly stuck in teenage days, n refusal to wake up is still very much there *G*. Why is it that when he is out he’s more… I can’t find the words…he’s more out by himself, selfsufficient, alone… confident in himself…unaware of me or the others? And contrariwise why is it that I can’t get time out so easily and when I do it’s hardly ever "just me"? On the movie Sybil, Vicky is out and she is talking to Dr Wilbur and Dr Wilbur asks her about the others and she says, "I can see them now. Oh, I don’t want to. It was so much nicer when it was just you and me." Why can I

always "see" Luthe and he never, ever "sees" me? I really like it when I do get to be out for long times and it’s just me all by myself. oh yes, defnitly, i like that to, karen is an exepton, im just as happy when its just me n karen. Sometimes I think that because I’m more out when things are "safer", meaning nobody is around, that it means I am the "core

personaility" and Luthe is the alter. Wouldn’t that be a humbling experience for him? <grin heheh i like your thinkin

am becoming good friends with a gentleman at work who’s multiple but won’t acknowledge it.  every once in awhile he’ll say something like "i just can’t figure out why i would do something so *stupid*!" and, since i consider that an invitation, i usually grin unrepentantly and tell him it’s because he’s multiple. he, like me, uses humor as his primary deflector shields, and usually has a snappy comeback to throw me off course. recently, his response was "No, see, i can’t be multiple, because if i were, i’m afraid they would gang up on me and vote me out." i smiled kinda slowly n said "that happened to me. actually, it turned out for the best in the end.  we’re much happier now.  but *man* did it sock for about 2.5 yrs." he responded that he didn’t have that kinda time available for a nervous breakdown, n i readily agreed that he’s functional as-is, and so his choice to leave that whole barrel of monkeys alone is probably the wisest one he could make.  (he works 2 jobs to support his wife and 4 kids.  his wife works full-time also, but he still gripes about money problems.) i’m so fond of him.  it feels like we’ve been friends forever.  i’ve taken it upon myself to prop him up mentally at work so that he doesn’t get overwhelmed with the stress and quit.  for example, a consumer stumbled and fell shortly after my friend dropped him off (the friend is the senior driver at my agency, since we transport a lot of our consumers to and fro), and i was the 3rd person on the scene. the emergency aspect got taken care of, i made sure the new staff (like, 2nd day on the job) in our office was ok, went abt my job for a bit, and wandered past jeff’s office at breaktime shortly thereafter. i sat n chatted with him for a bit, cuz it seemed like he needed to talk.  he didn’t bring it up, so i kinda waited for the right moment, n said "Hey, you ok about this morning?  You did a good job."  That was all he needed.  He started vocalizing the self-recriminations he’d obviously been rehearsing in his mind.  Like "I should have dropped them off at the curb.  I shouldn’t have…I should have…I didn’t know what to do…" I kinda treated him like i would a voice in my own head (heh), and responded to the important stuff, let the other chaff fall where it would (it just needed to get said – didn’t require a response), and made sure he understood that he had done the best he could and hadn’t done anything wrong. made me feel good that i’d thought to check in with him to see if he was ok, since it did some good.  so i do that from time to time.  makes me feel useful.  :) jt – Hide quoted text — Show quoted text – ramble ramble ramble and more rambles from me C. nicky — For more information about this posting service, contact: If you want an anonymous account, visit our sign-up page: https://asarian-host.net/cgi-bin/signup.cgi

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It’s funny Celeste would make a post about dreaming because I wanted to talk about it a similar aspect of being multiple: waking.

Me. I think. Sometimes I come in and we’re already awake. Actually, come to think of it, that happens a lot. I don’t really remember waking up. But of the main fronters that I can see, I’m the one who wakes up first. Sometimes Becca or Chris will wake up before work, but usually Chris doesn’t wake up until about 7am, half an hour before we get our hot chocolate from Graeme (I don’t like it, so she comes near the front to drink it. She use to be the one who worked and got in the habit of having it.) Dat

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usses  :) – Hide quoted text — Show quoted text – It’s funny Celeste would make a post about dreaming because I wanted to talk about it a similar aspect of being multiple: waking.

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For us it depends on if we got enough sleep or not.  If we DID, then a big, usually Val or Bri wakes up first and gets things moving.  If we did NOT, then a kid, usually sarabeth, is the first and is generally crabby and whiny about having to get up. – Hide quoted text — Show quoted text – It’s funny Celeste would make a post about dreaming because I wanted to talk about it a similar aspect of being multiple: waking. 99% of the time it’s Luthe that gets up first. Probably because our SO wakes us up and… But every once in a while, even sometimes when our SO gets us up, it is me that wakes up first. It’s hard for me to describe the importance of those days. The days I get up first seem more wholly mine then the others. It’s not that I’m the only one "out" during those days, because the others are "out" almost as much as usual, it’s that I get to be out more often, more easily, and when I am it’s more solely, wholly, genuinely *me*. Why is it easier for Luthe to be out than it is for me? Why is it that when he is out he’s more… I can’t find the words…he’s more out by himself, selfsufficient, alone… confident in himself…unaware of me or the others? And contrariwise why is it that I can’t get time out so easily and when I do it’s hardly ever "just me"? On the movie Sybil, Vicky is out and she is talking to Dr Wilbur and Dr Wilbur asks her about the others and she says, "I can see them now. Oh, I don’t want to. It was so much nicer when it was just you and me." Why can I always "see" Luthe and he never, ever "sees" me? I really like it when I do get to be out for long times and it’s just me all by myself. Sometimes I think that because I’m more out when things are "safer", meaning nobody is around, that it means I am the "core personaility" and Luthe is the alter. Wouldn’t that be a humbling experience for him? <grin ramble ramble ramble nicky

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*chuckles* this is just so cute.  ;) jt

– Hide quoted text — Show quoted text – usses  :) It’s funny Celeste would make a post about dreaming because I wanted to talk about it a similar aspect of being multiple: waking.

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Diary 7 – Return to the Scary Bear!

Question:

Hi, Steve, Well it sounds like you had an enjoyable evening out and you can’t beat BOGOF. I am enjoying reading your Diary and enjoy the humor added to your posts. smiles, Elise

Thank you Elise. Glad you like them. Steve. — The charter is available at:

okay but sorry/sorry but okay

Question:

sorry we’re not connecting with the group very well lately.

You don’t have to be sorry. We all understand this is the difficult time of year for you guys. : wish we would but doesnt seem to work.

I wish you could too because I feel…somehow like everything is going to be "ok after all" when you are around lots. we can’t even share what’s good in our life right now. doesnt work. doesnt feel right.

But even if you can’t share I am glad that your life is good right now. we logon to the group wanting to read/reply/share but … nothing. we feel sad we can’t do it. sometimes coming here where we learned so much were we’ve found support and made friends over many many years feels like some sort of SI. cuz we wish we could just connect to the group again and we can’t. yet we can’t leave it all alone either.

I so know the feeling. So much. Everynight lately I have been checking my email and wanting to write…but can’t. I get on the newsgroups and check who’s posting and who’s sad and who’s happy…and I want to reply but I can’t. This same thing is happening to me a lot too. Do you suppose it’s somebody else getting in the way? and now instead of sharing what makes us happy/laugh, instead of replying to somebody else or to try and _do_ something to make us feel connected … we … whine.

It’s not a whine, you guys. You have very eloquently shared an experience. Besides, there’s not a whine in you. I’ve known you for so long and I have never seen a hint of a whine in you. what a shame.

Only that you want to write but can’t. esp. as we’re doing really okay.

Good! Keep being ok. ANd write when you can, ok? but… — we better shut up and hope it’s maybe just for now.

I believe it will be. I hope it will be. I will be waiting for you to post more later. Sometimes friends don’t have to speak. Yet friendship stays as strong. Your friend, nicky — For more information about this posting service, contact: If you want an anonymous account, visit our sign-up page: https://asarian-host.net/cgi-bin/signup.cgi

Response:

hi guys, sorry we’re not connecting with the group very well lately. wish we would but doesnt seem to work. we can’t even share what’s good in our life right now. doesnt work. doesnt feel right. we logon to the group wanting to read/reply/share but … nothing. we feel sad we can’t do it. sometimes coming here where we learned so much were we’ve found support and made friends over many many years feels like some sort of SI.

this is about the best way i’ve heard it described…i know exactly what you mean. been there myself lots… cuz we wish we could just connect to the group again and we can’t. yet we can’t leave it all alone either.

and if you’re like me, you wish it would go one way or the other…that you could connect, or leave it, but not be stuck at that middle place. and now instead of sharing what makes us happy/laugh, instead of replying to somebody else or to try and _do_ something to make us feel connected … we … whine. what a shame.

well i, for one, don’t mind the whining.  it’s always nice to see a post from you. diane, of Ravensong In black, there are all colors,      Where darkness, always the light,              Iridescent the raven’s wing in sunlight.                                  – Brooke Medicine Eagle

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sorry we’re not connecting with the group very well lately. wish we would but doesnt seem to work. we can’t even share what’s good in our life right now. doesnt work. doesnt feel right. we logon to the group wanting to read/reply/share but … nothing. we feel sad we can’t do it. sometimes coming here where we learned so much were we’ve found support and made friends over many many years feels like some sort of SI. cuz we wish we could just connect to the group again and we can’t. yet we can’t leave it all alone either. and now instead of sharing what makes us happy/laugh, instead of replying to somebody else or to try and _do_ something to make us feel connected … we … whine. what a shame. esp. as we’re doing really okay. but … — we better shut up and hope it’s maybe just for now. mischa’s chaos

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heya!

sorry we’re not connecting with the group very well lately. wish we would but doesnt seem to work.

but but but your conectin right now!"! we can’t even share what’s good in our life right now. doesnt work. doesnt feel right.

at lest your lettin us on the fact that there are good things goin on now, even when this isnt best of fun times right now!  am glad there are, n would be v good to hear bout them, but absolutly no presure.  just wondrin if its that ya feel cos your not postin your quota that it dosnt seem right to just post about some good stuff goin on?  n if its that just if, then remember, theres always room for some good stuff here!!!!! we logon to the group wanting to read/reply/share but … nothing. we feel sad we can’t do it.

i know we go thru phases at asd here, n somtims i stay away from the jello type posts n other times i stay away from the heavy stuff, n other times i just stay away lol. but just phases.  its such a fluid group, that the dynamics change so much here so often that its just somtimes for me it dosnt feel quite like the dynamics i know how to handle so well. it;ll pass is the shorter verson  sometimes coming here where we learned so much were we’ve found support and made friends over many many years feels like some sort of SI. cuz we wish we could just connect to the group again and we can’t. yet we can’t leave it all alone either.

why like SI?  cos ya come here wantin to conect knowin ya dont feel like it/able? or sommat else completly? from a selfish point of view im prety glad ya cant leave it all alone. and now instead of sharing what makes us happy/laugh, instead of replying to somebody else or to try and _do_ something to make us feel connected … we … whine.

whine?  is that in another post then??  your conectin, first half of it. what a shame. esp. as we’re doing really okay.

coooool! am glad but … — we better shut up and hope it’s maybe just for now.

good to hear from ya, n hopin ya feel more like spendin more time here soon. thinkin of yas, C. – Hide quoted text — Show quoted text – mischa’s chaos

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hello diane of Ravensong hi guys, sorry we’re not connecting with the group very well lately. wish we would but doesnt seem to work. we can’t even share what’s good in our life right now. doesnt work. doesnt feel right. we logon to the group wanting to read/reply/share but … nothing. we feel sad we can’t do it. sometimes coming here where we learned so much were we’ve found support and made friends over many many years feels like some sort of SI. this is about the best way i’ve heard it described…i know exactly what you mean. been there myself lots…

… it’s such a weird place, isn’t it? esp. as we never manage to remember how we got there nor how we left it the last time. it feels like a room without doors (and, of course, without windows, too). strange … mashora has written about that room and there’s a drawing of that room, both are quite old. strange. *hm* cuz we wish we could just connect to the group   again and we can’t. yet we can’t leave it all alone either. and if you’re like me, you wish it would go one way or the other…that you could connect, or leave it, but not be stuck at that middle place.

exactly. that’s exactly how it feels to us. *astonished puzzled look on our face* and now instead of sharing what makes us happy/laugh, instead of replying to somebody else or to try and _do_ something to make us feel connected … we … whine. what a shame. well i, for one, don’t mind the whining.  it’s always nice to see a post from you.

thanks for saying this – and esp. thanks for sharing your experience here. it may sound strange cuz this sort of means you connected to us via the feeling of not being able to connect. life it definitely strange! )) mischa’s chaos – Hide quoted text — Show quoted text – diane, of Ravensong In black, there are all colors,      Where darkness, always the light,              Iridescent the raven’s wing in sunlight.                                  – Brooke Medicine Eagle

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hello nicky luthe schrieb: sorry we’re not connecting with the group very well lately. You don’t have to be sorry. We all understand this is the difficult time of year for you guys. :

thanks for saying this. *bows* wish we would but doesnt seem to work. I wish you could too because I feel…somehow like everything is going to be "ok after all" when you are around lots.

oh. *shysmilessortaspeechless* we can’t even share what’s good in our life right now. doesnt work. doesnt feel right. But even if you can’t share I am glad that your life is good right now.

Life seems to thro unexpected gifts our way. Like last night when we accidentally met some teachers from our sign-language school at a ocktail bar – and then Elektra found out she can just be there and turn things round for a while by speaking for us as well as for herself and be happy with it. Or like thursday when lots of nice things happened at a reading close to our hometown. A nice person from our past showing up – someone we hadn’t seen for almost 20 years. A stranger in the audience thanking us for making him feel things he didnt know he could feel. The sound engineer handing us his card saying "whenever you’re ready to do a cd with your novella, call me". Multiple friends signing the book we use for the readings for us with sentiments and compliments which just left us speechless and at the verge of (happy) tears. etc. we logon to the group wanting to read/reply/share but … nothing. we feel sad we can’t do it. sometimes coming here where we learned so much were we’ve found support and made friends over many many years feels like some sort of SI. cuz we wish we could just connect to the group again and we can’t. yet we can’t leave it all alone either. I so know the feeling. So much. Everynight lately I have been checking my email and wanting to write…but can’t. I get on the newsgroups and check who’s posting and who’s sad and who’s happy…and I want to reply but I can’t. This same thing is happening to me a lot too.

Thank you for sharing this. Makes us feel understood, a lot less weird and even in a strange deep way connected. We’re sorry you know this, too, but we’re happy you’ve shared this with us. *graciousbow* Do you suppose it’s somebody else getting in the way?

No, not really. We get lost in our own thoughts. We end up tied up in paradoxical feelings. Each of us seems to do this individually, in her or his very own way … it’s strange. Yet it’s so familar, something which always has come our way at times. Do you think somebody else is getting in your way when this happens? and now instead of sharing what makes us happy/laugh, instead of replying to somebody else or to try and _do_ something to make us feel connected … we … whine. It’s not a whine, you guys. You have very eloquently shared an experience. Besides, there’s not a whine in you. I’ve known you for so long and I have never seen a hint of a whine in you.

*blushing* what a shame. Only that you want to write but can’t.

*whispers* thank you. esp. as we’re doing really okay. Good! Keep being ok. ANd write when you can, ok?

okay, we’ll try. and we look forward to this, too *shy smiles* but… — we better shut up and hope it’s maybe just for now. I believe it will be. I hope it will be. I will be waiting for you to post more later.

thank you. *more smiles* Sometimes friends don’t have to speak. Yet friendship stays as strong.

this is so very true. thank you for being such a good friend, nicky! ))) mischa’s chaos – Hide quoted text — Show quoted text – Your friend, nicky — For more information about this posting service, contact: If you want an anonymous account, visit our sign-up page: https://asarian-host.net/cgi-bin/signup.cgi

Response:

hi celeste Celeste schrieb: heya! sorry we’re not connecting with the group very well lately. wish we would but doesnt seem to work. but but but your conectin right now!"!

*stickingourtongueout* *sheesh* well … yes and no. when we wrote this last night, it didnt feel at all like connecting but like singing in the dark. or like feeling alone in the middle of a crowd. today … it’s a bit different. *shysmiles* we can’t even share what’s good in our life right now. doesnt work. doesnt feel right. at lest your lettin us on the fact that there are good things goin on now, even when this isnt best of fun times right now!  am glad there are, n would be v good to hear bout them, but absolutly no presure.  just wondrin if its that ya feel cos your not postin your quota that it dosnt seem right to just post about some good stuff goin on?  n if its that just if, then remember, theres always room for some good stuff here!!!!!

sometimes it doesnt feel right to post about good stuff, you’re absolultely right here. sometimes it’s just that we feel "too different". plus … we’re not good with the quota-stuff. sometimes even this gets in the way. we can be weird, ya know. ) we logon to the group wanting to read/reply/share but … nothing. we feel sad we can’t do it. i know we go thru phases at asd here, n somtims i stay away from the jello type posts n other times i stay away from the heavy stuff, n other times i just stay away lol.

that describes it perfectly for us too. so thanks for sharing this a lot. *bows* but just phases.  its such a fluid group, that the dynamics change so much here so often that its just somtimes for me it dosnt feel quite like the dynamics i know how to handle so well. it;ll pass is the shorter verson

hehe so we hope, we really do hope that it’ll pass like it always did so far.  sometimes coming here where we learned so much were we’ve found support and made friends over many many years feels like some sort of SI. cuz we wish we could just connect to the group again and we can’t. yet we can’t leave it all alone either. why like SI?  cos ya come here wantin to conect knowin ya dont feel like it/able?

exactly. it feels like it would be a lot wiser to withdraw completely, give up trying what cannot work out and will only hurt ourselves. or sommat else completly? from a selfish point of view im prety glad ya cant leave it all alone.

)) we like you being selfish. ) and now instead of sharing what makes us happy/laugh, instead of replying to somebody else or to try and _do_ something to make us feel connected … we … whine. whine?  is that in another post then??  your conectin, first half of it.

*stickingthetongueout* *shy smiles* what a shame. esp. as we’re doing really okay. coooool! am glad

us too. and amazed. very very amazed. like we said in the post to nicky – it’s like life decided to throw unexpected nice things our way which dont get lost in what’s still stressfull (like this season in general, like the eternally annoying/anxiety-ridden issue of financial insecurity, etc.) but … — we better shut up and hope it’s maybe just for now. good to hear from ya, n hopin ya feel more like spendin more time here soon.

thank you. *bows* *smiles* hope so, too, mischa’s chaos – Hide quoted text — Show quoted text – thinkin of yas, C. mischa’s chaos

Response:

heya!

hi celeste Celeste schrieb: heya! sorry we’re not connecting with the group very well lately. wish we would but doesnt seem to work. but but but your conectin right now!"! *stickingourtongueout* *sheesh*

heheh :

is MS fatal? if so, how long does the patient live?

Question:

"laura davis" <lodee…@yahoo.Com> wrote in message

news:BD80AE49.FBD0%lodeedoe@yahoo.Com… – Hide quoted text — Show quoted text -> ON 9/29/04 4:37 PM Rob Duncan actually said this about that ; >> "rose dawn scott" <rosedawn_sc…@yahoo.com> wrote in message >> news:cac53056.0409290851.7842fadf@posting.google.com… >>> "Rob Duncan" <robdun…@gbronline.com> wrote in message >>> <news:UvmdnW3d0ae6K8vcRVn-uA@gbronline.com>… >>>> In regard to you fear.  Itll never happen.  Its too easy to create >>>> devises >>>> to accomodate any possibility.  Unless your eyelids became spastic and >>>> remained shut permenently.  G-d forbid.  I cant imagine any scenario >>>> where >>>> you would be left incomunicado.  (sp?)  Lets say it happens… have >>>> someone >>>> get ahold of me, (cocky posturing in high-gear) I can figure out >>>> anything! >>>> :*) >>> rob, just a hypothetical in my case, but a reality in other people’s >>> cases — what if someone was using voice-recognition software because >>> s/he was blind, and then began to have a lot of problems with his or >>> her speech? >>> i would definitely like to think there would be a way for technology >>> to help people in a situation such as that remain in contact with the >>> world at large, but other than reading newspaper editions in braille, >>> communicating one-on-one through touch sign language, and that kind of >>> thing, my admittedly un-scientific brain can’t conceive of any way to >>> stay hooked up with folks online — maybe a voice program to read >>> stuff to you, and then a braille keyboard to type replies — but what >>> about the fact that so many people with M.S. have numbness and sensory >>> problems with their hands and fingers anyway? >>> rose >> If you could still talk, however bad it may be, you can still use voice >> software.  The computer has to learn "your" voice.  As the disease >> progressed you could update knew speech patterns into it. >> I believe that they already have devices that detect eye movements and >> translate them into cursor movements.  You can also spell, letter by >> letter, >> words, using just your eyes.  Hell, in all of one second I just came up >> with >> a way to type using headphones and a single button that could be actuated >> by >> virtually any movable muscle on the body. >> Theres no reason to fear the complete lack of communication.  Im sure >> that >> people who do this for a living are much more creative than I.  If not, >> then >> maybe Ive have a project ahead of me, who knows? >> Rob > RJ Cooper has switches for any body part you can use.  He’s pretty > creative. > Lo

Who is he?  Or is it a company?  Do you have an email, a phone number, and an address? Is this really an issue?  My idea is so simple it could be usable in two or three months.  I would of course do this for free.  It wouldnt take to much of my time. Rob

Response:

ON 9/29/04 4:37 PM Rob Duncan actually said this about that ; – Hide quoted text — Show quoted text -> "rose dawn scott" <rosedawn_sc…@yahoo.com> wrote in message > news:cac53056.0409290851.7842fadf@posting.google.com… >> "Rob Duncan" <robdun…@gbronline.com> wrote in message >> <news:UvmdnW3d0ae6K8vcRVn-uA@gbronline.com>… >>> In regard to you fear.  Itll never happen.  Its too easy to create >>> devises >>> to accomodate any possibility.  Unless your eyelids became spastic and >>> remained shut permenently.  G-d forbid.  I cant imagine any scenario >>> where >>> you would be left incomunicado.  (sp?)  Lets say it happens… have >>> someone >>> get ahold of me, (cocky posturing in high-gear) I can figure out >>> anything! >>> :*) >> rob, just a hypothetical in my case, but a reality in other people’s >> cases — what if someone was using voice-recognition software because >> s/he was blind, and then began to have a lot of problems with his or >> her speech? >> i would definitely like to think there would be a way for technology >> to help people in a situation such as that remain in contact with the >> world at large, but other than reading newspaper editions in braille, >> communicating one-on-one through touch sign language, and that kind of >> thing, my admittedly un-scientific brain can’t conceive of any way to >> stay hooked up with folks online — maybe a voice program to read >> stuff to you, and then a braille keyboard to type replies — but what >> about the fact that so many people with M.S. have numbness and sensory >> problems with their hands and fingers anyway? >> rose > If you could still talk, however bad it may be, you can still use voice > software.  The computer has to learn "your" voice.  As the disease > progressed you could update knew speech patterns into it. > I believe that they already have devices that detect eye movements and > translate them into cursor movements.  You can also spell, letter by letter, > words, using just your eyes.  Hell, in all of one second I just came up with > a way to type using headphones and a single button that could be actuated by > virtually any movable muscle on the body. > Theres no reason to fear the complete lack of communication.  Im sure that > people who do this for a living are much more creative than I.  If not, then > maybe Ive have a project ahead of me, who knows? > Rob

RJ Cooper has switches for any body part you can use.  He’s pretty creative. Lo

Response:

"Goy Liath" <goyli…@hotmail.com> wrote in message

news:a1ca7b5e.0409222244.3740aea@posting.google.com… > thanks in advance.

It definitely affects trolls that way. They get it and poof they’re dead…

Response:

"Mas Rapido!" <wouldnt…@liketoknow.schnurby> wrote in message <news:6nq6d.4075$nj.1042@newssvr13.news.prodigy.com>… > "Goy Liath" <goyli…@hotmail.com> wrote in message > news:a1ca7b5e.0409222244.3740aea@posting.google.com… > > thanks in advance.

what is it about this group or the computer that makes otherwise kind people react such a way. A simple question was asked.. a simple response is deemed not stupid comments – Hide quoted text — Show quoted text -> It definitely affects trolls that way. They get it and poof they’re dead…

Response:

"Rob Duncan" <robdun…@gbronline.com> wrote in message <news:UvmdnW3d0ae6K8vcRVn-uA@gbronline.com>… > In regard to you fear.  Itll never happen.  Its too easy to create devises > to accomodate any possibility.  Unless your eyelids became spastic and > remained shut permenently.  G-d forbid.  I cant imagine any scenario where > you would be left incomunicado.  (sp?)  Lets say it happens… have someone > get ahold of me, (cocky posturing in high-gear) I can figure out anything! > :*)

rob, just a hypothetical in my case, but a reality in other people’s cases — what if someone was using voice-recognition software because s/he was blind, and then began to have a lot of problems with his or her speech? i would definitely like to think there would be a way for technology to help people in a situation such as that remain in contact with the world at large, but other than reading newspaper editions in braille, communicating one-on-one through touch sign language, and that kind of thing, my admittedly un-scientific brain can’t conceive of any way to stay hooked up with folks online — maybe a voice program to read stuff to you, and then a braille keyboard to type replies — but what about the fact that so many people with M.S. have numbness and sensory problems with their hands and fingers anyway? rose

Response:

"rose dawn scott" <rosedawn_sc…@yahoo.com> wrote in message news:cac53056.0409290851.7842fadf@posting.google.com… – Hide quoted text — Show quoted text -> "Rob Duncan" <robdun…@gbronline.com> wrote in message > <news:UvmdnW3d0ae6K8vcRVn-uA@gbronline.com>… >> In regard to you fear.  Itll never happen.  Its too easy to create >> devises >> to accomodate any possibility.  Unless your eyelids became spastic and >> remained shut permenently.  G-d forbid.  I cant imagine any scenario >> where >> you would be left incomunicado.  (sp?)  Lets say it happens… have >> someone >> get ahold of me, (cocky posturing in high-gear) I can figure out >> anything! >> :*) > rob, just a hypothetical in my case, but a reality in other people’s > cases — what if someone was using voice-recognition software because > s/he was blind, and then began to have a lot of problems with his or > her speech? > i would definitely like to think there would be a way for technology > to help people in a situation such as that remain in contact with the > world at large, but other than reading newspaper editions in braille, > communicating one-on-one through touch sign language, and that kind of > thing, my admittedly un-scientific brain can’t conceive of any way to > stay hooked up with folks online — maybe a voice program to read > stuff to you, and then a braille keyboard to type replies — but what > about the fact that so many people with M.S. have numbness and sensory > problems with their hands and fingers anyway? > rose

If you could still talk, however bad it may be, you can still use voice software.  The computer has to learn "your" voice.  As the disease progressed you could update knew speech patterns into it. I believe that they already have devices that detect eye movements and translate them into cursor movements.  You can also spell, letter by letter, words, using just your eyes.  Hell, in all of one second I just came up with a way to type using headphones and a single button that could be actuated by virtually any movable muscle on the body. Theres no reason to fear the complete lack of communication.  Im sure that people who do this for a living are much more creative than I.  If not, then maybe Ive have a project ahead of me, who knows? Rob

Response:

Papatom <thom…@uvic.ca> wrote in message <news:hom9l05l7ce5cqgo3gf0ina2eqi0191csp@4ax.com>… > I would say that as one gets more immobile one gets sicker, so….only > if it is progressive.  My Aunt died of complications recently.  So did > my great Aunt.

sorry about your recent losses.  :{  i know a lot of folks who post here have other family members who also have M.S., but i’m not one of them — till my own diagnosis, i don’t think i’d ever even met anyone with it before. in a way, i think that was a good thing — i didn’t have anything to base assumptions about the way M.S. was ’supposed’ to progress, so i figured out how different it was for everyone, and how you’ve reallly got to get to know your OWN disease course, whereas maybe if i’d had family members with M.S., i’d have simply ass-umed that my own disease course would mirror theirs. but i don’t think ‘only if it is progressive’ is true. i have brain stem lesions. i’ve done what can be done — i’ve had breathing training/exrcises, and swallowing training/exercises. but it’s possible — not NECESSARILY probable, but definitely possible — that in spite of my practices, a day could come when i’ve been feeling just fine, and out of the blue very serious, potentially fatal, things involving respiration and swallowing could just pop up. for the most part — unless i’ve had recent choking/swallowing problems or breathing problems — i don’t think about it, but we [me'n'mine!] know it’s a possibility. ‘white coat, black shoes, black hat, cadillac…da girlz a time bomb!’ LOL. if lesions are ticking, there ain’t a damn thing i can do about it, so i just try to make the most of whatever time i’ve got –if i die when i’m 80 like both my ma and grandma, if i die of M.S. complications or directly due to M.S., or if i get struck in the eye by lightning tomorrow. [i just got sick of the old 'hit by a bus' cliche -- getting struck in the eye by lightning is SO much more interesting-sounding!] rose

Response:

Larry you are very wise in these matters.  My little sister is a nurse at a convalescent center.  Many people are just as you say.  Soaking up the good that life offers, while ignoring or dealing with the bad as best they can. In regard to you fear.  Itll never happen.  Its too easy to create devises to accomodate any possibility.  Unless your eyelids became spastic and remained shut permenently.  G-d forbid.  I cant imagine any scenario where you would be left incomunicado.  (sp?)  Lets say it happens… have someone get ahold of me, (cocky posturing in high-gear) I can figure out anything! :*) Rob "white.lynx" <white.l…@shaw.ca> wrote in message

news:jPn5d.106282$%S.46662@pd7tw2no… – Hide quoted text — Show quoted text -> Like we say all the time, it is different for everyone > I am an 8.0 on the EDSS scale which definitely means that I am not very > mobile.  I feel great, my blood pressure is really good and my only > discomfort comes from tight muscles which can easily be dealt with by > taking prescription drugs on an as needed basis.  I frequently tell people > that I feel good, my only problem is that my body does not work. > 10 to 15 years ago, the common feeling was that your life would be reduced > by 10 years from this disease.  This is no longer true. > I have never taken in the ABC drugs because they were never an option in > my circumstances.  If I had to guess, I would guess that I will live until > my early eighties.   I am currently 53. > I definitely believe that getting the assistance I need when I need it, a > good diet (I have lost 30 pounds since Christmas with my ultimate goal to > lose another 20 over the next year), and very minimal stress (including > financial because I am fortunate enough to be in a provincial government > subsidized long-term care facility) all contribute to a longer life. > I frequently forget I have MS until I try to do something.  I have too > many other things to do or think about.  My power wheelchair gives me > incredible freedom. > I am sorry to hear about your aunt. > The MS drop-in center I occasionally went to had a few elderly people. > One passed away recently, but he was in his eighties and active until his > last year or two. > Living in a long-term care facility there have been a lot of people pass > away since I have been here.  It just reinforces to me that quality of > life is more important than quantity. > I am more concerned about how I die, rather than when.  I am also > comfortable knowing that when my time comes, I will know when to fight and > when to just let go. > My experience is that most family members who tell their parents or spouse > to keep fighting are considering themselves first when, in some cases, > they should be giving their loved ones the message that it is okay to let > go, if that is what they want. > I am pretty at peace with this disease. We all have our own fears.  Mine > is been unable to communicate.  I have a couple options in what to do if > and when that happens, which takes the fear away. > I believe that the more control we have, the easier it is to deal with > situation. > As I said before, dignity is something that we control and have to > surrender rather than something that can be taken away from us or just > happens to us.  Seeing other people here eating food that has been minced > in a blender, or needing help with utensils in order to eat it is no where > near as bad as people’s fear about it. > I occasionally have to ask the staff to help feed me because on some days > my arms feel very tired and my hands do not work well with utensils.  Once > you are willing to accept help, it makes your life easier….. it’s no big > deal. > Enough preaching for now > – > Larry > Rather than building character, adversity tends to reveal it > written using voice recognition software > "Papatom" <thom…@uvic.ca> wrote in message > news:hom9l05l7ce5cqgo3gf0ina2eqi0191csp@4ax.com… >>I would say that as one gets more immobile one gets sicker, so….only >> if it is progressive.  My Aunt died of complications recently.  So did >> my great Aunt. >> pops

Response:

"rose dawn scott" <rosedawn_sc…@yahoo.com> wrote in message news:cac53056.0409241435.a1ffd65@posting.google.com… – Hide quoted text — Show quoted text -> Fred <n…@none.none> wrote in message > <news:ZnN4d.109789$yh.92357@fed1read05>… >> My Sister was diagnosed in 1983 and died in 1995. Like other people she >> did >> not die from MS, but if she didn’t have MS she wouldn’t have died. > see, i wonder about this sometimes. only in rare cases will you see > that someone has actually died from M.S., but you see people die from > ‘complications due to M.S.’ all the time — or hear about it, at > least. > people don’t ‘die of AIDS’ either; they die from all kinds of crap > picked up due to their compromised immune systems, and with advances > in HAART, many HIV-positive people are living ‘near normal’ lifespans > after their positive status is diagnosed. yet, you’ll never, EVER hear > anyone say that ‘AIDS is not a fatal disease.’ > is it just because when people say ‘fatal disease,’ they normally mean > something that will be fatal in the very near future? why is dying > from kaposi’s sarcoma due to AIDS so different from dying from ANS > failure due to brain stem lesions — or dying from pneumonia or an > infection that you wouldn’t have gotten if you didn’t have M.S.? > just wondering, > rose

Its because people with MS dont want to recognise the fact that it can be a fatal disease.  Its much easier to ignore it.  Plenty of people die from it every year. Rob

Response:

I would say that as one gets more immobile one gets sicker, so….only if it is progressive.  My Aunt died of complications recently.  So did my great Aunt. pops

Response:

Like we say all the time, it is different for everyone I am an 8.0 on the EDSS scale which definitely means that I am not very mobile.  I feel great, my blood pressure is really good and my only discomfort comes from tight muscles which can easily be dealt with by taking prescription drugs on an as needed basis.  I frequently tell people that I feel good, my only problem is that my body does not work. 10 to 15 years ago, the common feeling was that your life would be reduced by 10 years from this disease.  This is no longer true. I have never taken in the ABC drugs because they were never an option in my circumstances.  If I had to guess, I would guess that I will live until my early eighties.   I am currently 53. I definitely believe that getting the assistance I need when I need it, a good diet (I have lost 30 pounds since Christmas with my ultimate goal to lose another 20 over the next year), and very minimal stress (including financial because I am fortunate enough to be in a provincial government subsidized long-term care facility) all contribute to a longer life. I frequently forget I have MS until I try to do something.  I have too many other things to do or think about.  My power wheelchair gives me incredible freedom. I am sorry to hear about your aunt. The MS drop-in center I occasionally went to had a few elderly people.  One passed away recently, but he was in his eighties and active until his last year or two. Living in a long-term care facility there have been a lot of people pass away since I have been here.  It just reinforces to me that quality of life is more important than quantity. I am more concerned about how I die, rather than when.  I am also comfortable knowing that when my time comes, I will know when to fight and when to just let go. My experience is that most family members who tell their parents or spouse to keep fighting are considering themselves first when, in some cases, they should be giving their loved ones the message that it is okay to let go, if that is what they want. I am pretty at peace with this disease. We all have our own fears.  Mine is been unable to communicate.  I have a couple options in what to do if and when that happens, which takes the fear away. I believe that the more control we have, the easier it is to deal with situation.  As I said before, dignity is something that we control and have to surrender rather than something that can be taken away from us or just happens to us.  Seeing other people here eating food that has been minced in a blender, or needing help with utensils in order to eat it is no where near as bad as people’s fear about it. I occasionally have to ask the staff to help feed me because on some days my arms feel very tired and my hands do not work well with utensils.  Once you are willing to accept help, it makes your life easier….. it’s no big deal. Enough preaching for now – Larry Rather than building character, adversity tends to reveal it written using voice recognition software "Papatom" <thom…@uvic.ca> wrote in message

news:hom9l05l7ce5cqgo3gf0ina2eqi0191csp@4ax.com… – Hide quoted text — Show quoted text ->I would say that as one gets more immobile one gets sicker, so….only > if it is progressive.  My Aunt died of complications recently.  So did > my great Aunt. > pops

Response:

"Laura" <the_happy_w…@myrealbox.com> wrote in message

news:MtydnaDwC5vISc_cRVn-hw@wideopenwest.com… > yes..I think  yours IS.. > — > Laura > "Goy Liath" <goyli…@hotmail.com> wrote in message > news:a1ca7b5e.0409222244.3740aea@posting.google.com… >> thanks in advance.

Er…?  Laura, what was that supposed to mean?  Is this guy a troll or something? Rob

Response:

Brad Clarke <m…@privacy.net> wrote in news:upr6l0ldtc78jmta9o77v83k83j9hb8ukd@4ax.com: > On 22 Sep 2004 23:44:56 -0700, goyli…@hotmail.com (Goy Liath) wrote: >>>thanks in advance. > It can be in very rare cases. > My cousin was diagnosed with MS in 1993 and he died from complications > in 2002.

My Sister was diagnosed in 1983 and died in 1995. Like other people she did not die from MS, but if she didn’t have MS she wouldn’t have died. I was diagnosed in 1992 and I am still going strong. She was in a wheelchair 18 months after she was diagnosed. I have had it for over 12 years and I only use a power wheelchair at a mall or a casino where a lot of walking is involved. I use her as an illustration of how this disease can affect different people differently. Fred.

Response:

On Thu, 23 Sep 2004 18:56:10 -0700, "Rob Duncan" – Hide quoted text — Show quoted text -<robdun…@gbronline.com> wrote: >"Laura" <the_happy_w…@myrealbox.com> wrote in message >news:MtydnaDwC5vISc_cRVn-hw@wideopenwest.com… >> yes..I think  yours IS.. >> — >> Laura >> "Goy Liath" <goyli…@hotmail.com> wrote in message >> news:a1ca7b5e.0409222244.3740aea@posting.google.com… >>> thanks in advance. >Er…?  Laura, what was that supposed to mean?  Is this guy a troll or >something?

Yes he is. He’s been trolling a number of diverse groups with one line questions, often of a semitic/anit-semitic nature. Sometimes he sticks around. However, the responses will help someone who is genuinely worried about this sort of thing and googles for it. Stelios — The address in the headers is real and does not need de-mungeing

Response:

Fred <n…@none.none> wrote in message <news:ZnN4d.109789$yh.92357@fed1read05>… > My Sister was diagnosed in 1983 and died in 1995. Like other people she did > not die from MS, but if she didn’t have MS she wouldn’t have died.

see, i wonder about this sometimes. only in rare cases will you see that someone has actually died from M.S., but you see people die from ‘complications due to M.S.’ all the time — or hear about it, at least. people don’t ‘die of AIDS’ either; they die from all kinds of crap picked up due to their compromised immune systems, and with advances in HAART, many HIV-positive people are living ‘near normal’ lifespans after their positive status is diagnosed. yet, you’ll never, EVER hear anyone say that ‘AIDS is not a fatal disease.’ is it just because when people say ‘fatal disease,’ they normally mean something that will be fatal in the very near future? why is dying from kaposi’s sarcoma due to AIDS so different from dying from ANS failure due to brain stem lesions — or dying from pneumonia or an infection that you wouldn’t have gotten if you didn’t have M.S.? just wondering, rose

Response:

On 22 Sep 2004 23:44:56 -0700, goyli…@hotmail.com (Goy Liath) wrote: >>thanks in advance.

It can be in very rare cases. My cousin was diagnosed with MS in 1993 and he died from complications in 2002.

Response:

MS can be fatal, but it is more common to die from "complications" of, usually upper respiratory infection (pneumonia).  That said, people with MS live near normal life spans.  Just don’t try to buy life insurance. — Spelling and grammatical errors are deliberate to catch copyright violators.