Urgent Education Advocacy Alert for Parents in New York State

Question:

- Hide quoted text — Show quoted text – Did you earn your PhD from the back of a cereal box? The x-no-archive makes a mockery of your message.      … IMO. This is at least, the second time that you have done such a thing. If you wish for me to respect what you have posted whilst wagging the the initials "PhD" in my face; have the sense and decency to stand by what you post publicly.  Methinks, you are a phony …   Bugger off. [ BTW, you spelled "alt.suppport.tourette" wrong ... ] No, no RL. She’s the real deal. I remember her from another NG quite a few years back. Expert on Tourette (however its spelled; Groups has no spellchecker), very dedicated and kind professional.

Thunderbird does. You may not be familiar with her b/c she apparently doesn’t post here much any more, but she’s legitimate.

Agreed. Dr. Packer is well known to me.

Response:

- Hide quoted text — Show quoted text – I don’t know if you have been in contact yet with The Alliance to Prevent Restraint, Aversive Interventions, and Seclusion. Good group, sponsored by a number of national non-profits with an interest in protecting children with disabilities. Their parent guide is a great resource. Their web site is at http://www.aprais.org/ and the contact information is there. [posted and mailed] Nancy Unique, like everyone else [posting from ASAD] And what about the _New York Times_? Surely they’d be interested in reporting this (if they haven’t already). Imo, it should be widely publicized.

Newsday did an extensive expose on the use of electric shock devices to control students. There is a story in the NYT today about how Medicaid is hurting the disabled. If you email me, I will tell you more.

Response:

No, no RL. She’s the real deal. I remember her from another NG quite a few years back. Expert on Tourette (however its spelled; Groups has no spellchecker), very dedicated and kind professional. Thunderbird does.

LOL. I know, I know. I’m gonna install it. Correction: I’m going to let DH install it, but probably not tonight, as he’s running late and will probably be wiped out by the time he gets home. marcia

Response:

No, no RL. She’s the real deal. I remember her from another NG quite a few years back. Expert on Tourette (however its spelled; Groups has no spellchecker), very dedicated and kind professional. Thunderbird does. LOL. I know, I know. I’m gonna install it. Correction: I’m going to let DH install it, but probably not tonight, as he’s running late and will probably be wiped out by the time he gets home.

It is easy. No problems, and the extensions are useful.

Response:

<snipped Did you earn your PhD from the back of a cereal box? The x-no-archive makes a mockery of your message.      … IMO.

Or, perhaps she doesn’t want to be abused in the way many of us here have been?  If you were in her position, would you want to have such lies about you posted all over Usenet, for anyone to find in a simple ‘net search? Kitten

Response:

<snipped Did you earn your PhD from the back of a cereal box? The x-no-archive makes a mockery of your message.      … IMO. Or, perhaps she doesn’t want to be abused in the way many of us here have been?  If you were in her position, would you want to have such lies about you posted all over Usenet, for anyone to find in a simple ‘net search? Kitten

If she [or anyone] is ashamed to have their posts archived.  They HAVE a reason. IMO, it is because they KNOW they are out of line. As for being abused.  YOU and your ilk have done just that.  Like… Mark Probert.

Response:

- Hide quoted text — Show quoted text – <snipped Did you earn your PhD from the back of a cereal box? The x-no-archive makes a mockery of your message.      … IMO. Or, perhaps she doesn’t want to be abused in the way many of us here have been?  If you were in her position, would you want to have such lies about you posted all over Usenet, for anyone to find in a simple ‘net search? Kitten As for being abused.  YOU and your ilk have done just that.

Yeppers! Usenets polymorphous parade of perverted drug pushers,  drug addicts, convicted child molesters,   child porno buffs,  S & M Freaks, malicious hackers,  lying stalking filth and/or their mentally ill supporters and apologists have archived nearly 11,000 defamatory posts about yours truly using just one of the ways my name is printed. Fortunately,  defamation laws afford persons who have been defamed by other people special priveleges: therefore,  the defamation law allows yours truly to publish articles ensuring that everyone  who reads those 11,000 defamatory articles are aware the authors of the defamation are a polymorphous parade of morally degenerate drug pushers,  drug addicts,  child molesters,  child porno buffs,  adult porno kings,  S & M Freaks,  notorious cyberstalkers,  and people with extensive psychiatric histories. The modus operandi of ASAD’s defamers is to defame someone as a troll, to signify to all it’s AOK for everyone to post false and slanderous accusations about the person. Given the definition of *troll* published in wikipedia,  and given the legal definition of defamation—ASAD’s polymorphous parade of yahoo’s give up any and all rights they might have had under defamation laws the moment each yahoo posts a malicious article describing another as a troll—regardless,  of what other false and slanderous allegations ASAD’s polymorphous parade of perverted yahoo’s publish about the posters they maliciously label  a "troll".

Response:

- Hide quoted text — Show quoted text – <snipped Did you earn your PhD from the back of a cereal box? The x-no-archive makes a mockery of your message.      … IMO. Or, perhaps she doesn’t want to be abused in the way many of us here have been?  If you were in her position, would you want to have such lies about you posted all over Usenet, for anyone to find in a simple ‘net search? Kitten

I agree. It’s not clear to me how anyone can read anything more than straightforward information in her post–nothing to be ashamed of or hide, nothing out of line–unless my reading comprehension has dropped signficantly in the past 48 hours. I think we’ve all seen how people can distort the truth and use it to promote malicious agendas, so the x-no-archive decision makes a lot of sense to me. Besides, why would anyone need this archived? At some point the article will be out-of-date, or will be replaced by more current information. marcia LSFC

Response:

And it’s nice ’seeing’ you again… if you’re the same "unique" poster I remember from a.s.t. way back when… if you’re not, then it’s nice to meet another ‘unique’ poster.

Yes, I am that Nancy. I still read AST on a regular basis, but I don’t post there much, as I don’t have much pertinent to say. (I know the readers of ASAD will find that hard to believe. LOL.) Nancy Unique, like everyone else

Response:

– Hide quoted text — Show quoted text – <snipped Did you earn your PhD from the back of a cereal box? The x-no-archive makes a mockery of your message.      … IMO. Or, perhaps she doesn’t want to be abused in the way many of us here have been?  If you were in her position, would you want to have such lies about you posted all over Usenet, for anyone to find in a simple ‘net search? Kitten I agree. It’s not clear to me how anyone can read anything more than straightforward information in her post–nothing to be ashamed of or hide, nothing out of line–unless my reading comprehension has dropped signficantly in the past 48 hours. I think we’ve all seen how people can distort the truth and use it to promote malicious agendas, so the x-no-archive decision makes a lot of sense to me. Besides, why would anyone need this archived? At some point the article will be out-of-date, or will be replaced by more current information. marcia LSFC You and Kitten are both quite correct in  your hypotheses, but I won’t discuss why publicly.  Thank you both for giving me the benefit of any doubt. If anyone has any additional questions on the regulatory issue, they are welcome to email me.  There is also an action alert up at Wrightslaw now: http://www.wrightslaw.com/news/06/abuse.nys.regs.htm If there are further updates on the issue, I’ll post again. Leslie

IOW, please excuse the skulduggery.   Your message is all ‘posture’. Theatre…. You might find the following book to be useful.       http://www.amazon.com/gp/product/185326699X/ RL

Response:

- Hide quoted text — Show quoted text – [A copy of the full alert is posted at http://www.tourettesyndrome.net/actionalert071606.htm.  A downloadable pdf version of the alert is at http://www.tourettesyndrome.net/Files/ActionAlert_ABI.pdf] As you may have heard already, a new set of "emergency" education regulations have been approved by the Board of Regents. Despite claiming to bar or prohibit certain things, these regulations actually open the door for all public schools, BOCES, state-approved private special education schools and the NYS Schools for the Blind and Deaf to use corporal punishment, aversives (such as painful electric skin shock), restraints, and time out rooms for children and teens with disabilities. NYSED enacted these new regulations even though they admit that there is no research supporting the use of most of these techniques.  There is certainly no research validation for using most of these techniques in public school settings. There are already at least 23 school districts in NYS currently recommending the use of aversive behavioral interventions for disabled students, and probably many more already using aversive behavioral interventions without documenting what they have been doing to disabled children. These regulations need to be approved again at the Board of Regents meeting scheduled for September 11-12 in Albany.  We all need to take action now.  You have an opportunity to respond to these new regulations. See the State’s notice at http://www.vesid.nysed.gov/specialed/behavioral/publichearing.htm on how to provide feedback and deadlines for providing feedback. You can read the new regulations online at http://www.regents.nysed.gov/2006Meetings/June2006/0606emscvesida1.htm or get the pdf version at http://www.tourettesyndrome.net/Files/Cort_060606.pdf.  To give you an idea how bad these regulations are, as per the new approved regulations: 1.  Corporal punishment is barred — except that a teacher can apparently use restraint and physical force on a child to protect the school’s property or to remove the child or stop the child from interfering with a school function – even if the property is a 3-cent crayon and even if what the child is doing is a symptom of their disability (e.g., perseveratively asking questions or repeatedly tapping the crayon on the desk). 2.  Children can be put in time out rooms with no specific requirements as to the staff training required for the person who monitors the child while the child is in the room, no medical assessment to see if time out would be dangerous for the child, no psychological assessment to determine if time out would be traumatic for the child, and no limit on how long a child can be put in time out for. 3.  School personnel can use "aversive behavioral interventions" such as painful electric skin shock if they get a waiver to use it for the child.  Other "aversives" that they may now use if they obtain a "waiver" include putting a child out in the cold without adequate clothing, withholding essential hydration or nutrition, using noxious sprays in the child’s face or making them inhale noxious scents, depriving them of sleep, and using "deep muscle squeezes"  or "strangling." 4.  School districts can obtain waivers to use "aversive behavioral interventions" for a specific child  by applying to the Commissioner of Education’s office, who will send the request to an "expert panel" who will review the student’s records. The panel then advises the Commissioner and the district, but it is up to the child’s Committee on Special Education (CSE) or Committee on Preschool Special Education (CPSE) to decide whether to grant itself the waiver. Thus, the very same people who may have failed to order helpful diagnostic evaluations or related services may now approve the use of aversive behavioral interventions on a child. The new regulations do not mandate that any child being recommended for aversive behavioral interventions must have a psychiatric evaluation or a neurological evaluation at public expense before the CSE or CPSE can recommend or implement an aversive behavioral intervention.  The new regulations do not require regular monitoring by medical and doctoral-level mental health professionals to insure the child’s health and safety. 5,  School personnel can use restraints (mechanical) on children as part of a planned behavior intervention program.  There is no time limit on how long the child or teen can be kept in mechanical restraints. Disabled children and teens require more protections when aversive behavioral interventions are implemented in school settings, not fewer protections. At the very least, NYSED should have incorporated all relevant federal protections concerning the use of restraints and seclusion (what NYS calls time out rooms). It didn’t. All relevant federal policies and  commissions firmly state that restraints, time out, and ‘aversives’ should only be used for genuine safety emergencies, they should be used with significant medical and psychological/psychiatric protections, and they should never be used as punishment.  NYSED’s new regulations do exactly the opposite by specifically allowing these techniques to be used as planned consequences for non-emergency situations and by failing to require even minimum health and safety protections. To read the entire action alert, with background on why NYSED did this and suggestions for how to write to your Regent and NYSED, please see the full alert at: http://www.tourettesyndrome.net/actionalert071606.htm Did you earn your PhD from the back of a cereal box? The x-no-archive makes a mockery of your message.      … IMO. This is at least, the second time that you have done such a thing. If you wish for me to respect what you have posted whilst wagging the the initials "PhD" in my face; have the sense and decency to stand by what you post publicly.  Methinks, you are a phony …   Bugger off. [ BTW, you spelled "alt.suppport.tourette" wrong ... ]

The substance of the message is quite correct. I have been following it, and writing to some people about it. Newsday did an expose on it. I wish I could be more clear, but, that would involve posting personal information, which would be used by the stalkers.

Response:

Eh? What a flamer! I was referring to academic integrity, here. Taking the effort to make a strong, persuasive statement and concurrently asserting that it should not be archived. ……    …   s   m   e   l   l   s        b  a  d

Have you ever taken a good, long,  hard look at the,  ahem,  curriculum vitae’s of the polymorphous parade of perverted human beings who have been cyberstalking,  threatening,  libeling,  forging, frogging, impostering,  hacking me in virtual reality,  and,  doing far worse things to me and mine in real life? Do you wish to be relentlessly cyberstalked,  globally libeled, incessantly hacked, forged,  froggered, impostered,  the recipient of an endless stream of threats against you and your loved ones,   while also being viciously stalked in real life—by a group of people who are the baddest of the baddest and the Maddest of ALL Mad people? Because,  if you don’t want to be the target of vicious gang stalking in cyberspace and RL by the baddest of the baddest and the maddest of the maddest,  then,  you will not post anything which mocks, ridicules,  derides,  denigrates,  devalues,  or jeers at usenet’s lying stalking filth’s malignant leader. Besides,  your flaming the malignant leader of usenet’s polymorphous parade of yadda,  yadda,  yadda might incite OP to do the same,  which will unwittingly place them and their loved one’s in harm’s way. If the polymorphous parade of perverted human beings who have been engaging in criminal activities to control the flow of info on usenet ever fail to maintain the false perception that the polymorphous parade of perverted human beings engaging in criminal activities to control the flow of info on the WWW are  *good*,  *respectable* and *valuable* people—and,  the posters they stalk, harass, threaten, libel, hack, forge, frogger, imposter, and, terrorize are evil demons,  then,  the polymorphous parade of perverted human beings who stalked Curio, Brad, Andrew, Tor,  Art W. Hoof,  yours truly,   would all get locked up in prison for a long,  long,  long time. the reason the people who stalked Curio,  Brad,  Hoof,  Andrew,  me etc aren’t all in prison right now is because the public is in  DENIAL of that which the US DOJ has known since 1999  "…..the U.S. Department of Justice (Reno, 1999) links cyberstalking with the activities of paedophiles" Enuff said! .

Response:

- Hide quoted text — Show quoted text – Eh? What a flamer! I was referring to academic integrity, here. Taking the effort to make a strong, persuasive statement and concurrently asserting that it should not be archived. ……    …   s   m   e   l   l   s        b  a  d Have you ever taken a good, long,  hard look at the,  ahem,  curriculum vitae’s of the polymorphous parade of perverted human beings who have been cyberstalking,  threatening,  libeling,  forging, frogging, impostering,  hacking me in virtual reality,  and,  doing far worse things to me and mine in real life? Do you wish to be relentlessly cyberstalked,  globally libeled, incessantly hacked, forged,  froggered, impostered,  the recipient of an endless stream of threats against you and your loved ones,   while also being viciously stalked in real life—by a group of people who are the baddest of the baddest and the Maddest of ALL Mad people? Because,  if you don’t want to be the target of vicious gang stalking in cyberspace and RL by the baddest of the baddest and the maddest of the maddest,  then,  you will not post anything which mocks, ridicules,  derides,  denigrates,  devalues,  or jeers at usenet’s lying stalking filth’s malignant leader. …

Um …  Or don’t go into academia, either … [snip] Enuff said!

Cordially, RL

Response:

Sometimes ‘being stressed’ and moving forwards is the only way to make it happen.    

Sometimes being stressed leads to moving forward, a good thing. I still hate to see you in pain. marcia

Response:

- Hide quoted text — Show quoted text – I don’t know if you have been in contact yet with The Alliance to Prevent Restraint, Aversive Interventions, and Seclusion. Good group, sponsored by a number of national non-profits with an interest in protecting children with disabilities. Their parent guide is a great resource. Their web site is at http://www.aprais.org/ and the contact information is there. [posted and mailed] Nancy Unique, like everyone else [posting from ASAD]

And what about the _New York Times_? Surely they’d be interested in reporting this (if they haven’t already). Imo, it should be widely publicized.

Response:

- Hide quoted text — Show quoted text – Eh? What a flamer! I was referring to academic integrity, here. Taking the effort to make a strong, persuasive statement and concurrently asserting that it should not be archived. ……    …   s   m   e   l   l   s        b  a  d Have you ever taken a good, long,  hard look at the,  ahem,  curriculum vitae’s of the polymorphous parade of perverted human beings who have been cyberstalking,  threatening,  libeling,  forging, frogging, impostering,  hacking me in virtual reality,  and,  doing far worse things to me and mine in real life? Do you wish to be relentlessly cyberstalked,  globally libeled, incessantly hacked, forged,  froggered, impostered,  the recipient of an endless stream of threats against you and your loved ones,   while also being viciously stalked in real life—by a group of people who are the baddest of the baddest and the Maddest of ALL Mad people? Because,  if you don’t want to be the target of vicious gang stalking in cyberspace and RL by the baddest of the baddest and the maddest of the maddest,  then,  you will not post anything which mocks, ridicules,  derides,  denigrates,  devalues,  or jeers at usenet’s lying stalking filth’s malignant leader. … Um …  Or don’t go into academia, either …

Nor go for counseling…. And,   most important of all, do not ever get counseling for a child… A child sent for counseling is apt to be made the recipient of photographed "hygeine" lessons, or worse…..

Response:

- Hide quoted text — Show quoted text – Did you earn your PhD from the back of a cereal box? The x-no-archive makes a mockery of your message.      … IMO. This is at least, the second time that you have done such a thing. If you wish for me to respect what you have posted whilst wagging the the initials "PhD" in my face; have the sense and decency to stand by what you post publicly.  Methinks, you are a phony …   Bugger off. [ BTW, you spelled "alt.suppport.tourette" wrong ... ]

Eh? What a flamer!

I was referring to academic integrity, here. Taking the effort to make a strong, persuasive statement and concurrently asserting that it should not be archived. ……    …   s   m   e   l   l   s        b  a  d

Response:

– Hide quoted text — Show quoted text – [A copy of the full alert is posted at http://www.tourettesyndrome.net/actionalert071606.htm.  A downloadable pdf version of the alert is at http://www.tourettesyndrome.net/Files/ActionAlert_ABI.pdf] As you may have heard already, a new set of "emergency" education regulations have been approved by the Board of Regents. Despite claiming to bar or prohibit certain things, these regulations actually open the door for all public schools, BOCES, state-approved private special education schools and the NYS Schools for the Blind and Deaf to use corporal punishment, aversives (such as painful electric skin shock), restraints, and time out rooms for children and teens with disabilities. Talk about human rights violations! Do you have to be a resident of NY to protest, or can anyone join in? marcia I doubt if NYSED or the Board of Regents would particularly care what parents/individuals outside of NYS think, but I can think of one way parents outside of NY might be of real help: If your child was harmed by the inappropriate use of a behavioral or aversive intervention, then if you can document that, we might be able to compile a list of real examples of why these new regs are dangerous and why they should be withdrawn.  We already know that NYSED has gotten a lot of complaints about misuse/abuse of time out rooms from NYS parents (and there are at least two time out room-related lawsuits that I know of here in NY), but to my knowledge, NYSED has never really investigated or done anything serious about preventing  time out room misuse or abuse,  even though they’ve had "guidelines" since 1994.  The new regs only make things more dangerous with respect to time out rooms, because they don’t specify any actual time limit for how long a child can be placed in time out or how often, etc.  The federal regulations do specify time limits. The federal regs also say that a patient is allowed out of seclusion once the health/safety emergency is over.  NYSED’s regs allow the child to just be secluded for fixed amounts of time, even if there is no emergency. We also know of more extreme cases here in NYS and in other states where kids were seriously harmed in school settings due to inappropriate behavior interventions (like the Shawn Witte case in Nevada that I had posted to a.s.t. back in ‘99 and a case here in NYS where a kid was found unconscious in a time out room, having seizures),  If people know of situations like that they can document, we can also use that information to help make the case to the Board of Regents as to why these regs should be withdrawn.  When I contacted Pete and Pam Wright of Wrightslaw.com  to tell them what was going on here and what we’re trying to do,  they  replied that they will be including a story or notice on this issue in their next newsletter, so I hope that we can reach even more parents through them.   When I say "we," by the way, that’s not an editorial "we." Although I’m doing a lot of individual advocacy/alerts on this issue to local, state, and national organizations as well as to individual parents via my web site (and now usenet),  I’m also involved in some collaborative advocacy efforts.  In the future, I’ll be posting something about a new coalition we’re forming in NYS. In the meantime ,,,,  if you know parents in other states who have stories/first-hand experiences to share that can help us advocate in NYS, have them contact me via email.  Just delete the _nospam from the email address in this post to contact me.     And I almost dread saying this, but to NYS parents:  this is only one of TWO really serious issues in NYS education right now if you’re parenting a child with a disability.  The other one is a "done deal" in terms of the regulations being permanent but is extremely serious as it involves the minimizing and coverup of the sexual molestation of severely  disabled children in NY schools.  Right now, we’re focusing on the "aversives" issue because we have a chance to change things before the regs become permanent, but you can expect to see more advocacy notices from me in the future on this issue and the sexual molestation issue. Have to get ready for work…  

I don’t know if you have been in contact yet with The Alliance to Prevent Restraint, Aversive Interventions, and Seclusion. Good group, sponsored by a number of national non-profits with an interest in protecting children with disabilities. Their parent guide is a great resource. Their web site is at http://www.aprais.org/ and the contact information is there. [posted and mailed] Nancy Unique, like everyone else [posting from ASAD]

Response:

- Hide quoted text — Show quoted text – Did you earn your PhD from the back of a cereal box? The x-no-archive makes a mockery of your message.      … IMO. This is at least, the second time that you have done such a thing. If you wish for me to respect what you have posted whilst wagging the the initials "PhD" in my face; have the sense and decency to stand by what you post publicly.  Methinks, you are a phony …   Bugger off. [ BTW, you spelled "alt.suppport.tourette" wrong ... ] No, no RL. She’s the real deal. I remember her from another NG quite a few years back. Expert on Tourette (however its spelled; Groups has no spellchecker), very dedicated and kind professional. You may not be familiar with her b/c she apparently doesn’t post here much any more, but she’s legitimate. If she is for ‘real’ then all the more reason for making the emphasis that she should stick to her gumption. Let me guess … She is playing coy and insecure so that people will take more notice of what she posts.    Thus, I am providing her with what she seeks  …    ===  Controversy  <=== Whoopee.

Hmmm. No, I think you’re stressed and that’s interfering with your ability to be objective. You seem to be having a difficult evening, if I’m reading your other posts correctly. She’s posting information to relevant groups on a topic that’s of great concern. There’s no attempt to do anything other than alert people to a problem that needs to be addressed, I’m sure. From past recollection, she’s a very straightforward and trustworthy individual. Sorry things are continuing to go badly for you. (other groups cut from this portion of the thread) marcia

Response:

Did you earn your PhD from the back of a cereal box? The x-no-archive makes a mockery of your message.      … IMO. Hmmm. No, I think you’re stressed and that’s interfering with your ability to be objective. …

I wasn’t the first person to point this out.            See: http://tinyurl.com/qpoce Sometimes ‘being stressed’ and moving forwards is the only way to make it happen.    

Response:

- Hide quoted text — Show quoted text – Did you earn your PhD from the back of a cereal box? The x-no-archive makes a mockery of your message.      … IMO. This is at least, the second time that you have done such a thing. If you wish for me to respect what you have posted whilst wagging the the initials "PhD" in my face; have the sense and decency to stand by what you post publicly.  Methinks, you are a phony …   Bugger off. [ BTW, you spelled "alt.suppport.tourette" wrong ... ]

What a flamer! Surely you know that the polymorphous parade of perverted pharmaceutical marketeers,  porno kings,  child porno buffs,  convicted child molesters,  S & M freaks and the gutless anonymous lying stalking filth are all going to reply to your posts with the usual LIES about what a wonderful person their malignant leader is.

Response:

- Hide quoted text — Show quoted text – Did you earn your PhD from the back of a cereal box? The x-no-archive makes a mockery of your message.      … IMO. This is at least, the second time that you have done such a thing. If you wish for me to respect what you have posted whilst wagging the the initials "PhD" in my face; have the sense and decency to stand by what you post publicly.  Methinks, you are a phony …   Bugger off. [ BTW, you spelled "alt.suppport.tourette" wrong ... ]

No, no RL. She’s the real deal. I remember her from another NG quite a few years back. Expert on Tourette (however its spelled; Groups has no spellchecker), very dedicated and kind professional. You may not be familiar with her b/c she apparently doesn’t post here much any more, but she’s legitimate. marcia

Response:

[A copy of the full alert is posted at http://www.tourettesyndrome.net/actionalert071606.htm.  A downloadable pdf version of the alert is at http://www.tourettesyndrome.net/Files/ActionAlert_ABI.pdf] As you may have heard already, a new set of "emergency" education regulations have been approved by the Board of Regents. Despite claiming to bar or prohibit certain things, these regulations actually open the door for all public schools, BOCES, state-approved private special education schools and the NYS Schools for the Blind and Deaf to use corporal punishment, aversives (such as painful electric skin shock), restraints, and time out rooms for children and teens with disabilities.

Talk about human rights violations! Do you have to be a resident of NY to protest, or can anyone join in? marcia

Response:

- Hide quoted text — Show quoted text – Did you earn your PhD from the back of a cereal box? The x-no-archive makes a mockery of your message.      … IMO. This is at least, the second time that you have done such a thing. If you wish for me to respect what you have posted whilst wagging the the initials "PhD" in my face; have the sense and decency to stand by what you post publicly.  Methinks, you are a phony …   Bugger off. [ BTW, you spelled "alt.suppport.tourette" wrong ... ] No, no RL. She’s the real deal. I remember her from another NG quite a few years back. Expert on Tourette (however its spelled; Groups has no spellchecker), very dedicated and kind professional. You may not be familiar with her b/c she apparently doesn’t post here much any more, but she’s legitimate.

If she is for ‘real’ then all the more reason for making the emphasis that she should stick to her gumption. Let me guess … She is playing coy and insecure so that people will take more notice of what she posts.    Thus, I am providing her with what she seeks  …    ===  Controversy  <=== Whoopee.

Response:

– Hide quoted text — Show quoted text – [A copy of the full alert is posted at http://www.tourettesyndrome.net/actionalert071606.htm.  A downloadable pdf version of the alert is at http://www.tourettesyndrome.net/Files/ActionAlert_ABI.pdf] As you may have heard already, a new set of "emergency" education regulations have been approved by the Board of Regents. Despite claiming to bar or prohibit certain things, these regulations actually open the door for all public schools, BOCES, state-approved private special education schools and the NYS Schools for the Blind and Deaf to use corporal punishment, aversives (such as painful electric skin shock), restraints, and time out rooms for children and teens with disabilities. NYSED enacted these new regulations even though they admit that there is no research supporting the use of most of these techniques.  There is certainly no research validation for using most of these techniques in public school settings. There are already at least 23 school districts in NYS currently recommending the use of aversive behavioral interventions for disabled students, and probably many more already using aversive behavioral interventions without documenting what they have been doing to disabled children. These regulations need to be approved again at the Board of Regents meeting scheduled for September 11-12 in Albany.  We all need to take action now.  You have an opportunity to respond to these new regulations. See the State’s notice at http://www.vesid.nysed.gov/specialed/behavioral/publichearing.htm on how to provide feedback and deadlines for providing feedback. You can read the new regulations online at http://www.regents.nysed.gov/2006Meetings/June2006/0606emscvesida1.htm or get the pdf version at http://www.tourettesyndrome.net/Files/Cort_060606.pdf.  To give you an idea how bad these regulations are, as per the new approved regulations: 1.  Corporal punishment is barred — except that a teacher can apparently use restraint and physical force on a child to protect the school’s property or to remove the child or stop the child from interfering with a school function – even if the property is a 3-cent crayon and even if what the child is doing is a symptom of their disability (e.g., perseveratively asking questions or repeatedly tapping the crayon on the desk). 2.  Children can be put in time out rooms with no specific requirements as to the staff training required for the person who monitors the child while the child is in the room, no medical assessment to see if time out would be dangerous for the child, no psychological assessment to determine if time out would be traumatic for the child, and no limit on how long a child can be put in time out for. 3.  School personnel can use "aversive behavioral interventions" such as painful electric skin shock if they get a waiver to use it for the child.  Other "aversives" that they may now use if they obtain a "waiver" include putting a child out in the cold without adequate clothing, withholding essential hydration or nutrition, using noxious sprays in the child’s face or making them inhale noxious scents, depriving them of sleep, and using "deep muscle squeezes"  or "strangling." 4.  School districts can obtain waivers to use "aversive behavioral interventions" for a specific child  by applying to the Commissioner of Education’s office, who will send the request to an "expert panel" who will review the student’s records. The panel then advises the Commissioner and the district, but it is up to the child’s Committee on Special Education (CSE) or Committee on Preschool Special Education (CPSE) to decide whether to grant itself the waiver. Thus, the very same people who may have failed to order helpful diagnostic evaluations or related services may now approve the use of aversive behavioral interventions on a child. The new regulations do not mandate that any child being recommended for aversive behavioral interventions must have a psychiatric evaluation or a neurological evaluation at public expense before the CSE or CPSE can recommend or implement an aversive behavioral intervention.  The new regulations do not require regular monitoring by medical and doctoral-level mental health professionals to insure the child’s health and safety. 5,  School personnel can use restraints (mechanical) on children as part of a planned behavior intervention program.  There is no time limit on how long the child or teen can be kept in mechanical restraints. Disabled children and teens require more protections when aversive behavioral interventions are implemented in school settings, not fewer protections. At the very least, NYSED should have incorporated all relevant federal protections concerning the use of restraints and seclusion (what NYS calls time out rooms). It didn’t. All relevant federal policies and  commissions firmly state that restraints, time out, and ‘aversives’ should only be used for genuine safety emergencies, they should be used with significant medical and psychological/psychiatric protections, and they should never be used as punishment.  NYSED’s new regulations do exactly the opposite by specifically allowing these techniques to be used as planned consequences for non-emergency situations and by failing to require even minimum health and safety protections. To read the entire action alert, with background on why NYSED did this and suggestions for how to write to your Regent and NYSED, please see the full alert at: http://www.tourettesyndrome.net/actionalert071606.htm

Did you earn your PhD from the back of a cereal box? The x-no-archive makes a mockery of your message.      … IMO. This is at least, the second time that you have done such a thing. If you wish for me to respect what you have posted whilst wagging the the initials "PhD" in my face; have the sense and decency to stand by what you post publicly.  Methinks, you are a phony …   Bugger off. [ BTW, you spelled "alt.suppport.tourette" wrong ... ]

Response:

FYI

Question:

Reader’s Digest did an article on TS a year or so ago as well.  I was very disappointed about the content and wrote them.  Never heard back though. Naomi "Joanne" <j-…@removesympatico.ca> wrote in message

news:psSGd.12992$W33.431505@news20.bellglobal.com… – Hide quoted text — Show quoted text -> "Jodi" <hellofromj…@nospamcharter.net> wrote in message > news:%oZFd.3082$Wm4.2631@fe06.lga… > > Sent to me from TSA > > a.. > > a.. > > a.. This Sunday on 60 Minutes (CBS, 7:00 p.m.), there will be a feature > > segment on Tim Howard who from our understanding, talks in depth about > > living with Tourette Syndrome.  This will be a great education/awareness > > opportunity. You may wish to tape it and show it at chapter and/or support > > group events. > Thank you so much for the heads up. I watched it with Mat. I wanted to show > him that you can be anything you want and TS will not stop you. Mat loves > soccer so this was a bonus for him. > I especially loved the part: "I do not suffer from TS" > — > Joanne > mom to Mat the Amazing!

Response:

‘Twas Mon, 17 Jan 2005 07:36:02 -0800 when all alt.support.tourette stood in awe as "Jodi" <hellofromj…@nospamcharter.net> uttered: >He took alot of flack about having TS and >has won the (Manchester) people over despite it.  They showed newspaper >headlines that said the team was hiring a freak.  

To anyone familiar with British tabloids this wasn’t even surprising. >At that point most people >probably would have walked away.  He stayed and then won them all over.

People are making like he’s Jackie Robinson.  He had some resistance, but it’s not like half the team was shunning him.  Tourette quickly became no big thing. — RB |  

OT: We Are Not In Lake Wobegon Anymore!

Question:

"silver" <silve…@sbcglobal.net> wrote Silver, why post this stupidity to an MS support group?  Cant you find a political group to post in?  Do you need help? Rob

Response:

"abdi" <a…@yahoo.com> wrote in message

news:mEr1d.65049$Kt5.4123@twister.nyroc.rr.com… > Or it could be too much cocaine use and he thought he was saved by Christ > when it was just a drug induced hallucination.

The rabid group of socialist democrats here only serve to make regular democrats look dumber and dumber.  Please, if you want Kerry to lose, keep posting. Rob

Response:

>The rabid group of socialist democrats here only serve to make regular >democrats look dumber and dumber.  Please, if you want Kerry to lose, keep >posting. >Rob

Kerry is already doing badly mostly due to a bad campaign manager. Not going negative with President Bush from the start was a bad idea. He needs to go after President Bush word for word and then some. If he can’t close the gap before the first debate, it may be all over… Kerry needs to paint President Bush not the other way around. President Bush has changed his speaking style, and so Kerry need too as well. Kerry & Edwards 2004! http://www.democrats.org/ http://www.cbsnews.com/stories/2004/03/12/60minutes/main605700.shtml http://www.americanprogress.org/site/pp.asp?c=biJRJ8OVF&b=42263 http://www.cbsnews.com/stories/2004/04/01/60minutes/main609889.shtm

Response:

>President Bush has changed his speaking style, >and so Kerry need too as well. >(Specialsearcher)

It’s not easy when you have the personality and charisma of a beer bottle. Chuck

Response:

In <news:20040914070027.04966.00003664@mb-m24.aol.com>, ChuckMSRD said: >> President Bush has changed his speaking style, >> and so Kerry need too as well. >> (Specialsearcher) > It’s not easy when you have the personality and charisma of a beer > bottle. > Chuck

http://qcislands.ca/muirhead/Cult_of_Personality.mp3 (5MB audio)

Response:

Rob,     You are projecting again, you have to watch that tendency if you want to be cured. Make sure you follow the orders do not listen to no druggie and check this out http://www.bushwatch.com/bushcoke.htm The guy reminds me of you. — abdi —- Quae Comque Sunt Vera "Rob Duncan" <robdun…@gbronline.com> wrote in message

news:5a2dnUvGjrmgz9vcRVn-gA@gbronline.com… – Hide quoted text — Show quoted text -> "abdi" <a…@yahoo.com> wrote in message > news:mEr1d.65049$Kt5.4123@twister.nyroc.rr.com… > > Or it could be too much cocaine use and he thought he was saved by Christ > > when it was just a drug induced hallucination. > The rabid group of socialist democrats here only serve to make regular > democrats look dumber and dumber.  Please, if you want Kerry to lose, keep > posting. > Rob

Response:

Specialsearcher wrote: >>The rabid group of socialist democrats here only serve to >>make regular democrats look dumber and dumber.  Please, if >>you want Kerry to lose, keep posting.

Haven’t seen any "socialist democrats" post here … If you mean New Deal Democrats, OK. Or Progressives, yes. But what the hell is a socialist Democrat? > Kerry is already doing badly mostly due to a bad campaign manager. Not going

A month and a half of extremely strong, negative ads against him and he’s running 6 tenths of percent behind. What? > negative with President Bush from the start was a bad idea. He needs to go > after President Bush word for word and then some. If he can’t close the gap > before the first debate, it may be all over… Kerry needs to paint President > Bush not the other way around. President Bush has changed his speaking style, > and so Kerry need too as well.

This is a man who has run campaigns before, and he wins — almost always coming from behind. Let him run his campaign and stop being one of those Democrats that can’t stop beating up on themselves. KKT

Response:

Or it could be too much cocaine use and he thought he was saved by Christ when it was just a drug induced hallucination. — abdi —- Quae Comque Sunt Vera "Michael" <muirh…@haidagwaii.net> wrote in message

news:2qmgibF10ru6rU1@uni-berlin.de… > In <news:2dl1d.20394$or.5113@newssvr29.news.prodigy.com>, > silver said: > > Something has gone seriously haywire with the Republican Party. > The Case Against Him > His war on terror may well have made things worse. > He doesn’t deserve another chance > By MICHAEL KINSLEY

http://www.time.com/time/magazine/article/subscriber/0,10987,11010409… – Hide quoted text — Show quoted text ->                    Sep. 6, 2004 > What do we know about George W. Bush that we didn’t know four years > ago, when most of us voted for someone else? We ought to know a lot > more. Never has anyone become President of the United States less > pretested by life. And never has any President been tested so > dramatically so soon after taking office. > He was born at the intersection of two elites – the Eastern Wasp > establishment and the Texas oiligarchy. He gimme’d his way through > America’s top educational institutions. In his 40s, he was still a > kid, hanging around his father’s White House with not much to do. A > decade later, without actually winning the most votes, he was > President himself. The average gas-station attendant struggled harder > to get where he or she is than did George W. Bush. Then came Sept. 11. > The heroic saga writes itself, with help from Shakespeare’s Henry V > and the life story of Harry Truman. This small man, this wastrel > youth, finds himself leading his nation as it faces one of its > greatest challenges. And in the fire of great events, he finds the > fire of greatness within himself. Take it away, Peggy Noonan. > It’s a swell story line, but it won’t wash. Against a backdrop of > great events, even a mediocrity can seem great for a while. After > Sept. 11, there was certainly a great flurry of activity. War on > terrorism was declared. An actual war was started in Iraq and still > goes on. A Department of Homeland Security was founded. Various > American freedoms have been suspended. More than $100 billion has been > spent. At the rate things are going, the toll of American lives lost > responding to 9/11 may exceed the toll of 9/11 itself. The toll of > innocent foreigners is higher already. > But what has it all amounted to? As the most powerful nation in the > world, we have managed to track down and kill a few members of > al-Qaeda. No more airliners have been flown into skyscrapers in the > three years since 9/11, but then that was true in the three years > before 9/11 as well. Are we safer from terrorism than we were before? > The only honest answer is, Who knows? > You may approve or disapprove of the invasion and occupation of Iraq, > but it is clear beyond dispute that Iraq had nothing to do with 9/11. > By turning the world in general and the young people of the Muslim > world in particular against us, the decision to respond to al-Qaeda by > toppling Saddam Hussein could have made future terrorism more likely, > not less. > Subtract the war on terror, including Iraq, and the Bush presidency > looks small indeed. Buying short-term prosperity by goosing the > economy with heavy borrowing is no trick at all, yet it’s not clear > that Bush has pulled off even this (except the borrowing). His party > has controlled Congress for most of his term. Aside from the > traditional Republican wealth-friendly tax cut, can you name a single > major successful legislative initiative? O.K., prescription drugs for > seniors. Starting in 2006. If it works, which many experts doubt. > And what have these four years taught us about Bush as a person? Some > fortunate folks whose lives do not require struggle have used the gift > of ease to become better people: wiser than if they had had bills and > laundry cluttering their minds, kinder and gentler – in the famous > formulation of George Bush the Elder – than if they had needed sharp > elbows to get somewhere. Bush the Younger never seemed noble in this > way. But as we got to know him in 2000, the ease of his life had > seemed to make him affable, undogmatic and pleasantly underinvested in > anything as vulgar as an agenda. And then there was all that amiable > chatter about "compassionate conservatism." The forecast was for a > laconic, moderate presidency. > How wrong this was. Bush’s obvious lack of interest in policy issues > makes him more dogmatic, not less so. Intellectual laziness stiffens > the backbone as much as ideological fervor does. Hand him his position > on an issue, and he can cross it off his list. Bush’s intellectual > defenders compare him to Ronald Reagan, who was simpleminded (they > say) in the best sense. Reagan whittled down the world’s complexities > into a few simple truths. But Reagan pondered those complexities on > his way to simplicity. He stopped thinking only after a fair amount of > thought. Bush’s advisers deliver ideas to him like a pizza. His stove > has never been lit. And four years have not illuminated the meaning of > compassionate conservatism. It remains an insult to conservatives and > a mystery to everybody else. On every big social issue that has arisen > during his term (gay marriage, for example, and stem-cell research), > Bush has been steadfast in taking the hard-conservative line. > The Wasp graciousness, the good-ole-boy affability, even the obviously > sincere religious conviction run about a quarter-inch deep. In four > years, this small man had two historic opportunities to reach for > greatness, to lead this country to a new and better place, and he > passed up both. The first was when the Democrats patriotically bowed > to a Supreme Court decision they believed to be wrong, if not corrupt, > so that the U.S. could avoid a further constitutional crisis. What a > moment for bipartisanship! Maybe put more than a token Democrat in the > Cabinet? Not a chance. > George W. Bush’s second opportunity came on Sept. 11, 2001. Past > grievances suddenly seemed petty, current disagreements seemed > irrelevant, and, even among Bush’s opponents, desperate hope replaced > sullen doubts that our nation’s leader would be up to the task. Bush > got this gift from the opposition – the suspension of dislike and > disbelief – without doing anything to deserve it. He could have asked > for and got anything he wanted in the weeks and months after 9/11. And > he decided to invade Iraq. > For once, George W. Bush was tested. And he flunked. > Michael Kinsley is editorial and opinion editor of the Los Angeles > Times > Copyright

Meetings at work

Question:

Ken, you’re right – if the end product is to be the written word, the speech recognition technology is just not good enough (yet) for real-time speech conversion. However, for the deaf or seriously HOH in realtime, it’s terrific! We can mentally fix errors on the fly, so the mistakes don’t matter. Look at captioning of live TV – it’s full of mistakes, but how could we do without it? At meetings, I use a notebook with remote wireless mics strategically placed (pre-amps, too), a wireless receiver/mixer, and cobbled text-to-speech software. I get superb help on the screen. On the phone, the audio goes to a headset *and* to the same software. On SKYPE calls, I use DSP to equalize and get great results without a screen. I can’t use my hearing problem as an excuse for unclear thinking! "Ken" <tec…@surewest.net> wrote in message

news:10bkqc3p14v4h4c@corp.supernews.com… – Hide quoted text — Show quoted text -> This is like iCommunicator, that my district purchased with OUT my > suggestions as Technology specialist forSpecial Education. > I have found few people get accurate dictation or text from speech.  Part of > it is the way the equipment is configured and we just aren’t there yet with > really GOOD speech to text, but it could be worth a try.  Also a recording > device, like Sony’s digital recorder that stores ups to 4.5 hours on a > memory stick can then be connected to a computer and run through Dragon,but > I haven’t tried it yet but am about to do so.  Let you know ow it goes.! > Ken > "Henry" <OORA…@USMC.ret> wrote in message > news:10bkneopvcesee8@news.supernews.com… > > If you’re HOH (not DEAF), consider this: > > Use wideband high-fidelity audio, equalizer, amplifier, and good > headphones. > > If you’re DEAF (or very HOH), consider this: > > Use Dragon, AT&T, ViaVoice or a similarly competent speech-to-text > software > > package to get the speech directly onto a screen. The audio input should > go > > direct into the computer, not from speaker to microphone (with the various > > distortion produced by each). You’ll speak into a telephone microphone. > With > > a >2GHz processor that’s not burdened by a lot of other applications > running > > simultaneously, and at least 512MB memory, it can be fast enough so you’ll > > find it easy to mentally correct errors on the fly. And, you’ll have the > > advantage of perfect notes for review (text file). Contact the software > > manufacturers for the best configuration solutions. This is an amazing > > capability, and I have no idea why more people aren’t using it! > > "Paul Knudsen" <Hu…@dodgeit.com> wrote in message > > news:it7jb01tbkg48g0jlb0jqs1cu3a37gtl0c@4ax.com… > > > On 26 May 2004 08:20:03 -0700, yared22…@yahoo.com (Mike) wrote: > > > >I was wondering what new technologies can be used for meetings at > > > >work? Using the Relay Service on a computer screen with > > > >www.ip-relay.com? Or a conference relay call? > > > Well, the trouble with web relay is that, as I understand it, it is > > > typed in both directions.  That would slow down a meeting too much. > > > At my previous employer, every meeting room had a speaker phone, and > > > I’d imagine most companies have the same..  So why couldn’t you use > > > voice relay? > > > >THanks > > > >Mike > > > Welc. > > > — > > > Top 10 Conservative Idiots: > > > http://www.democraticunderground.com/top10/

Response:

This is like iCommunicator, that my district purchased with OUT my suggestions as Technology specialist forSpecial Education. I have found few people get accurate dictation or text from speech.  Part of it is the way the equipment is configured and we just aren’t there yet with really GOOD speech to text, but it could be worth a try.  Also a recording device, like Sony’s digital recorder that stores ups to 4.5 hours on a memory stick can then be connected to a computer and run through Dragon,but I haven’t tried it yet but am about to do so.  Let you know ow it goes.! Ken "Henry" <OORA…@USMC.ret> wrote in message

news:10bkneopvcesee8@news.supernews.com… – Hide quoted text — Show quoted text -> If you’re HOH (not DEAF), consider this: > Use wideband high-fidelity audio, equalizer, amplifier, and good headphones. > If you’re DEAF (or very HOH), consider this: > Use Dragon, AT&T, ViaVoice or a similarly competent speech-to-text software > package to get the speech directly onto a screen. The audio input should go > direct into the computer, not from speaker to microphone (with the various > distortion produced by each). You’ll speak into a telephone microphone. With > a >2GHz processor that’s not burdened by a lot of other applications running > simultaneously, and at least 512MB memory, it can be fast enough so you’ll > find it easy to mentally correct errors on the fly. And, you’ll have the > advantage of perfect notes for review (text file). Contact the software > manufacturers for the best configuration solutions. This is an amazing > capability, and I have no idea why more people aren’t using it! > "Paul Knudsen" <Hu…@dodgeit.com> wrote in message > news:it7jb01tbkg48g0jlb0jqs1cu3a37gtl0c@4ax.com… > > On 26 May 2004 08:20:03 -0700, yared22…@yahoo.com (Mike) wrote: > > >I was wondering what new technologies can be used for meetings at > > >work? Using the Relay Service on a computer screen with > > >www.ip-relay.com? Or a conference relay call? > > Well, the trouble with web relay is that, as I understand it, it is > > typed in both directions.  That would slow down a meeting too much. > > At my previous employer, every meeting room had a speaker phone, and > > I’d imagine most companies have the same..  So why couldn’t you use > > voice relay? > > >THanks > > >Mike > > Welc. > > — > > Top 10 Conservative Idiots: > > http://www.democraticunderground.com/top10/

Response:

If you’re HOH (not DEAF), consider this: Use wideband high-fidelity audio, equalizer, amplifier, and good headphones. If you’re DEAF (or very HOH), consider this: Use Dragon, AT&T, ViaVoice or a similarly competent speech-to-text software package to get the speech directly onto a screen. The audio input should go direct into the computer, not from speaker to microphone (with the various distortion produced by each). You’ll speak into a telephone microphone. With a >2GHz processor that’s not burdened by a lot of other applications running simultaneously, and at least 512MB memory, it can be fast enough so you’ll find it easy to mentally correct errors on the fly. And, you’ll have the advantage of perfect notes for review (text file). Contact the software manufacturers for the best configuration solutions. This is an amazing capability, and I have no idea why more people aren’t using it! "Paul Knudsen" <Hu…@dodgeit.com> wrote in message

news:it7jb01tbkg48g0jlb0jqs1cu3a37gtl0c@4ax.com… – Hide quoted text — Show quoted text -> On 26 May 2004 08:20:03 -0700, yared22…@yahoo.com (Mike) wrote: > >I was wondering what new technologies can be used for meetings at > >work? Using the Relay Service on a computer screen with > >www.ip-relay.com? Or a conference relay call? > Well, the trouble with web relay is that, as I understand it, it is > typed in both directions.  That would slow down a meeting too much. > At my previous employer, every meeting room had a speaker phone, and > I’d imagine most companies have the same..  So why couldn’t you use > voice relay? > >THanks > >Mike > Welc. > — > Top 10 Conservative Idiots: > http://www.democraticunderground.com/top10/

Response:

I was wondering what new technologies can be used for meetings at work? Using the Relay Service on a computer screen with www.ip-relay.com? Or a conference relay call? THanks Mike

Response:

On 26 May 2004 08:20:03 -0700, yared22…@yahoo.com (Mike) wrote: >I was wondering what new technologies can be used for meetings at >work? Using the Relay Service on a computer screen with >www.ip-relay.com? Or a conference relay call?

Well, the trouble with web relay is that, as I understand it, it is typed in both directions.  That would slow down a meeting too much. At my previous employer, every meeting room had a speaker phone, and I’d imagine most companies have the same..  So why couldn’t you use voice relay? >THanks >Mike

Welc. — Top 10 Conservative Idiots: http://www.democraticunderground.com/top10/

Response:

Regarding Anxiety Help Cortisol

Question:

As mentioned before I have had RAI for Grave’s and I am now hypothyroid. I have thried Synthroid T3 only and now Armour. Armour has been the only thing that works. My thyroid panels come back fine. My cortisol is still in normal range. My CBC come back fine. I have to take thyroid replacement and the only one that works is Armour. It has both T4 and T3 in it and the T3 speeds you up. If I split it and take it twice a day to cut back on the ammount of T3 speeding me up at one time all this does is increase my anxiety 2 times a day as compared to once a day. A couple of times during getting regulated I had to not take any armour for one day ( I did this twice) on these days I had no anxiety so it has to be the T3 in the armour setting off my anxiety disorder but I have no choice bit to take the armour and armour is all that works for me. If I take 1 mg of Ativan with my armour in the am I never get much anxiety and about 6 hours later after the T3 wears off (T3 has a short half life) I feel pretty normal. So I guess I am just trying to keep the T3 in the am from hitting me so hard by taking the Ativan with it therefore preventing getting anxious in the first place. It is far easier to nip it in the bud and then once the T3 portion of the armour is wearing off, the anxiety subsides and since I was not anxious for the whole day I do not need much if any Ativan at night as by taking the Ativan in the am with the Armour I never let the anxiety start.

Response:

PS All this started along time ago. I was told 10 years ago by many doctors even before my thyroid problem that I had bad anxiety disorder. I never took anything for it other than trying a few SSRIs which made me feel worse. But a few months ago at 37 I decided I would give Xanax a try. I took .25 twice a day for a couple of months and I found out just how bad my anxiety had been all those years as for the first time since I could remeber I felt half way calm. The xanax made me sleepy when I took enough to relieve the anxiety so I stopped  cold turkey and went threw hellish withdrawl partially due to return of the original anxiety. I have tried to ignore the anxiety again for the past couple of months but I after seeing how close to normal I felt on the xanax I simply cannot go back to living without something to help me cope. I guess it is like a taste of honey is worse than none at all or you don’t know what you got till it is gone. I know I will have to stay on Ativan probably the rest of my life as the reason is due to the underlying anxiety disorder I have had my whole life but with the thyroid replacement which I ahve to now have zooming me every morning my options are limited. I just hope this Ativan will keep working and I can just live somewhere close to a normal life. I started it 6 days ago and I can say there are not any side effects and I can finally be the nice person I have always wanted to be without my mind raising a million miles and hour due to feeling wired and not letting my self get that way in the first place by taking the ativan with my thyroid meds. It has made a huge difference,

Response:

Hi Ronnie, i know how you feel…for years i also had problems with anxiety, i was a single mom..did it without welfare or food stamps…held down two jobs and for a deaf lady with very little education..i made my way in the world…and raised my little girl……I am also a recovering heroin addict for over 20 years now My major anxiety problems began in my 30’s after my first battle with cervical cancer back in 85..i did the gambit…radiation therapy, chemo…you name it..and i had  a lot of things removed internally because the cancer spread…thats when things began to break down for me…i take HRT…and i was switched to my forth anxiety med this year…klonopin….i like the way it works… for me…i do want to let you know hun…as the years go by…we do get switched to other meds…so yes you will no doubt be taking some type of anxiety med for life..but it may not always be ativan…. Your in my prayers always and thank you so mch for sharing your story…you are a brave soul…as i read your reply…i just wanted to give you a big long bear hug..:) hey..i am a huggy person…LOL We all have our stories to share..we are all so brave in here…i just lov this group…sometimes i come in here and i just want to cry…i am amazed at the strengh, hope and courage we all share with one another….This group is filled with a lot of very cool and amazing people…Big Hugz, Gypsy

Response:

Xanax makes me feel like I drank a few glasses of wine. Clonazepam does not make me feel medicated and provides a long lasting calm to my nervous system. Have you ever tried Clonazepam, which is the generic form of Klonopin ? It’s a lifesaver for me. Tony

Response:

International education in the UK for hard of hearing people.

Question:

NZ is a good place, low unemployment and in quite a few job markets there aren’t enough trainees and personell to fill the jobs. have a google for details on NZ, I’m not sure exactly what you want to know, but google should answer any questions. rhys   "Lucille Paulis" <l.pau…@hetnet.nl> wrote in message news:bsnoeu$lrb$1@reader10.wxs.nl…   Hello everyone,   I’m a 18-year old (soon to be 19 in February) female student from the Netherlands. I have been hard of hearing since my birth, and I’ve always attended normal schools (normal primary school and normal secondary school), together with well-hearing people. (So I have never mastered the sign language, nor do I know how to read lips. My skills of reading lips are just like those of a normal hearing person; very little.) All that went rather fine, and at secondary school I used a little machine (I had to carry the receiver and the teacher the microphone) to follow my classes properly. After a year of (normal) college (which was much harder for me as a a HOH person than primary school and secondary school), I dropped out and went back to a normal secondary school for adults, to do the highest level of secondary school there in 1 year instead of 2 years. That’s what I am doing right now, and it’s threatening to not work out either, due to personal problems and social problems, some of which have to do with my personality (I’m quite introvert and shy) and my HOH-ness (like lack of social contacts and social skills, and my ability to speak clearer seems to get worse and worse, it’s like my tongue is slowly becoming paralyzed because it doesn’t seem to do what I want it to do in certain situations).   I have figured out that I cannot do anything with languages (my first love) in college or university. Actually, I have found that that there are not many studies that I can do as a HOH person, because there are too many things with audio or practice stuff involved with higher education studies nowadays (or too much contact with people, which is something I don’t favour). I experienced that during my 1 year at college, which had been very stressful for me. As a result, I came to the conclusion that I will probably have to do a profession that deals with people like me, or deaf people. At least then I will be around people that understand my problems (at least the ones that are specific to HOH people), so that a job like that will not be that stressful for me. So I would like to follow an education for such a job… but preferably abroad.   I’ve always been interested in English-speaking countries, the United Kingdom in particular. I have always dreamed of studying there, and working and living there. And I would like to do that someday. English is my best foreign language, and I can speak, write and read it very well, only hearing is sometimes much more difficult than hearing people in my native language. Going overbroad can be a bit of a problem for normal hearing persons (because of the language barrier), but for a HOH person it would be a much bigger problem.   I was wondering about the possibilities for foreign HOH-people in the United Kingdom – what schools, colleges or universities can I go to with my SGSE (= Senior General Secondary Education) diploma (I probably won’t achieve my pre-university diploma this year), and that provide an education for a job that deals with HOH and deaf people (preferably a job that requires not too much contact with people)? I seem to be unable to find enough information on the Internet – and that what I did find, is not satisfactory and confuses me.   I was hoping that some members of this newsgroup could help me out. I would be very grateful if you did.   Thank you very much in advance!   Sincerely,   Lucille Paulis

Response:

Hello everyone, I’m a 18-year old (soon to be 19 in February) female student from the Netherlands. I have been hard of hearing since my birth, and I’ve always attended normal schools (normal primary school and normal secondary school), together with well-hearing people. (So I have never mastered the sign language, nor do I know how to read lips. My skills of reading lips are just like those of a normal hearing person; very little.) All that went rather fine, and at secondary school I used a little machine (I had to carry the receiver and the teacher the microphone) to follow my classes properly. After a year of (normal) college (which was much harder for me as a a HOH person than primary school and secondary school), I dropped out and went back to a normal secondary school for adults, to do the highest level of secondary school there in 1 year instead of 2 years. That’s what I am doing right now, and it’s threatening to not work out either, due to personal problems and social problems, some of which have to do with my personality (I’m quite introvert and shy) and my HOH-ness (like lack of social contacts and social skills, and my ability to speak clearer seems to get worse and worse, it’s like my tongue is slowly becoming paralyzed because it doesn’t seem to do what I want it to do in certain situations). I have figured out that I cannot do anything with languages (my first love) in college or university. Actually, I have found that that there are not many studies that I can do as a HOH person, because there are too many things with audio or practice stuff involved with higher education studies nowadays (or too much contact with people, which is something I don’t favour). I experienced that during my 1 year at college, which had been very stressful for me. As a result, I came to the conclusion that I will probably have to do a profession that deals with people like me, or deaf people. At least then I will be around people that understand my problems (at least the ones that are specific to HOH people), so that a job like that will not be that stressful for me. So I would like to follow an education for such a job… but preferably abroad. I’ve always been interested in English-speaking countries, the United Kingdom in particular. I have always dreamed of studying there, and working and living there. And I would like to do that someday. English is my best foreign language, and I can speak, write and read it very well, only hearing is sometimes much more difficult than hearing people in my native language. Going overbroad can be a bit of a problem for normal hearing persons (because of the language barrier), but for a HOH person it would be a much bigger problem. I was wondering about the possibilities for foreign HOH-people in the United Kingdom – what schools, colleges or universities can I go to with my SGSE (= Senior General Secondary Education) diploma (I probably won’t achieve my pre-university diploma this year), and that provide an education for a job that deals with HOH and deaf people (preferably a job that requires not too much contact with people)? I seem to be unable to find enough information on the Internet – and that what I did find, is not satisfactory and confuses me. I was hoping that some members of this newsgroup could help me out. I would be very grateful if you did. Thank you very much in advance! Sincerely, Lucille Paulis

Response:

Lucille Paulis dipped her pen in the most precise ink, and along with other things wrote:

"Going overbroad can be a bit of a problem for normal hearing persons (because of the language barrier), but for a HOH person it would be a much bigger problem." I’d bet that you have non-verbal skills you don’t realize, and that in a place with unfamiliar language you’d cope better than most hearing people unfamiliar with the local language. Come to the US!  In paticular, come to southern California.  You’ll thirve, in school and in the work place.  Also, life is more fun here for deaf and hh than in other places.  You’ve got perfect English, so that’s one supposed immigration obsticle solved.  Lots of people come and stay.  Do it while you are young. Bill M

Response:

NPB question

Question:

Winner wins approx $20 US worth of automobile parts for $2.50 US. Shipping and handling from Ontario to is $12 US insured. Buyer backs out. Fees are $0.68 US. Worth the hassle to NPB? 7 positive feedback on the buyer. Goes back to my original issue of not posting shipment fees and asking buyers to get a quote prior to bidding….. Dave

Response:

: Winner wins approx $20 US worth of automobile parts for $2.50 US. : Shipping and handling from Ontario to is $12 US insured. : Buyer backs out. Fees are $0.68 US. : Worth the hassle to NPB? : 7 positive feedback on the buyer. : Goes back to my original issue of not posting shipment fees and asking : buyers to get a quote prior to bidding….. : Dave Just do mutually agreed NPB after 7 days, that way you get your fees (eBay gets enough money out of us anyway), that way you can file straight away for the FVF. Relist it, why should you pay twice for having to list it again. Just my 2 cents worth SB

Response:

angelshamshel wrote Buyer backs out. Fees are $0.68 US. Worth the hassle to NPB?

Always. If three sellers get a FVF refund on as a result of the same bidder backing out, the bidder is NARUed. If no-one does it, the bidder could continue to get away with it — and if this is the only time he ever backs out, your one FVF refund doesn’t hurt him. I once got a FVF refund of $0.02 CAD

Response:

SB wrote Relist it, why should you pay twice for having to list it again.

Note that the NPB process only gets you the Final Value Fee refunded, not listing fees.

Response:

Winner wins approx $20 US worth of automobile parts for $2.50 US. Shipping and handling from Ontario to is $12 US insured. Buyer backs out. Fees are $0.68 US. Worth the hassle to NPB? 7 positive feedback on the buyer. Goes back to my original issue of not posting shipment fees and asking buyers to get a quote prior to bidding….. Dave

Of course, and neg the loser too. You have a duty to warn other sellers about timewasters like this. — Best Regards Niel Humphreys Snowdon Computers

Response:

: SB wrote : Relist it, why should you pay twice for having to list it again. : : Note that the NPB process only gets you the Final Value Fee refunded, not : listing fees. : : Yep sorry my mistake, I meant why pay twice for FVF’s. Thanks for pointing that out. SB

Response:

Absolutely.  Plus, they deserve to be negged just before you file FVF.

If you neg someone just before you file FVF, can they post feedback at all for that transaction? Or does eBay then lock them out from posting feedback being the transaction wasn’t completed?

Response:

Absolutely.  Plus, they deserve to be negged just before you file FVF. If you neg someone just before you file FVF, can they post feedback at all for that transaction? Or does eBay then lock them out from posting feedback being the transaction wasn’t completed?

Unless your FVF happens to be the third unique one (which would NARU the user), they can of course still leave feedback. Mac

Response:

- Hide quoted text — Show quoted text – I have my first NPB… The auction ended on August 17.  I sent the invoice right away, and the payment reminder on August 20.  I sent a friendly e-mail on August 23, and another on August 25.  The one on August 25, I also sent via the Ebay messaging system, just in case my e-mails weren’t getting through for some reason. … I have had no response from this buyer at all.  Zero.  I don’t believe he/she is on vacation or something like that, because the buyer has won a couple of other auctions since winning mine. .. Is now the time to fill out the form for the non paying bidder?  How long do people usually wait? You’ve already been somewhat hyperactive by my standards. As others here   frequently point out, it’s not that unusual to just get a MO or check or even cash in an envelope, without ever receiving Email from the buyer.

Really?  You think it’s fine that they are bidding and winning other auctions, but can’t take 2 seconds to contact the seller of an auction they already won?  I can imagine that there are people who don’t go online frequently, and who probably only check email once in a while, but if the buyer is making other bids and wins, then clearly he or she is tech savvy enough to respond with his intentions.  And, clearly he is not on vacation or out of touch from a computer for some other reason. Unless the bidder is still bidding on the same item you’re selling, give it another week. If the bidder is still bidding on similar items hoping to get one cheaper, you might have a reason to be concerned.

The bidder is doing just that.  Not the exact same item, but similar items.  I wouldn’t have been concerned, except I have received no contact at all. Is this item expensive enough to justify this much of your time? I generally would send one mail at auction end, if no contact send a followup through the Ebay system after a week, then the Ebay reminder to pay a week after that.

That’s interesting.  I did a google search and it seems that most people NPB after 7 days of no contact, but that seemed a bit quick to me.  Many listings I have seen threaten to relist if there are just 3 days of no contact.  Here I thought I was being the patient one, simply using ebay’s system to send the invoice and reminder, and then sending a couple of friendly e-mails.   I don’t ever expect a MO to show up at my door immediately, but I simply do not understand why it is so unreasonable for the buyer to respond and just say that he intends to send one.

Response:

I have my first NPB, or at least this is the direction the buyer seems to be going. The auction ended on August 17.  I sent the invoice right away, When you say "jump" do they respond back with "how high"?

So you think it is a bad thing to send an invoice right away? Chill…M/O’s take a while, I’ve never had an MO person tell me it was in the mail…it just shows up.

Well, this is my first no-contact, no-payment bidder.  All the other MOs have e-mailed to say one was on the way, or at least responded to one of my e-mails to say that they sent a MO.   Don’t start freakin or filin stuff till the 11th hour, leave yourself plenty of time to receive the $ and just enough time to hang them with a NPB notice should the $ not show.

How much time is "plenty of time."  How long do you personally wait with no contact at all before filing the NPB?

Response:

- Hide quoted text — Show quoted text – <snip How much time is "plenty of time."  How long do you personally wait with no contact at all before filing the NPB? I personally wait 14 days after sending the invoice to send a reminder.   If I don’t get payment within a week after that I send a nonpaying bidder alert through eBay.  10 days after that I file for FVF credit. Almost all of my late paying bidders pay within that time frame.  A fair number of them just pay me and never send me anything else, including some of them that pay with checks and money orders. What else would they send you? An email stating that they have received Richard’s EOA information and are putting payment into the mail. Deborah Stevenson

I see said the blind man to his deaf wife! Education is about knowing where to look for answers. Thanks LB

Response:

<snip How much time is "plenty of time."  How long do you personally wait with no contact at all before filing the NPB? I personally wait 14 days after sending the invoice to send a reminder.   If I don’t get payment within a week after that I send a nonpaying bidder alert through eBay.  10 days after that I file for FVF credit. Almost all of my late paying bidders pay within that time frame.  A fair number of them just pay me and never send me anything else, including some of them that pay with checks and money orders.

What else would they send you? Confused

Response:

- Hide quoted text — Show quoted text – <snip How much time is "plenty of time."  How long do you personally wait with no contact at all before filing the NPB? I personally wait 14 days after sending the invoice to send a reminder.   If I don’t get payment within a week after that I send a nonpaying bidder alert through eBay.  10 days after that I file for FVF credit. Almost all of my late paying bidders pay within that time frame.  A fair number of them just pay me and never send me anything else, including some of them that pay with checks and money orders. What else would they send you?

An email stating that they have received Richard’s EOA information and are putting payment into the mail. Deborah Stevenson

Response:

<snip How much time is "plenty of time."  How long do you personally wait with no contact at all before filing the NPB?

I personally wait 14 days after sending the invoice to send a reminder.   If I don’t get payment within a week after that I send a nonpaying bidder alert through eBay.  10 days after that I file for FVF credit. Almost all of my late paying bidders pay within that time frame.  A fair number of them just pay me and never send me anything else, including some of them that pay with checks and money orders.

Response:

Hmm.  If someone refuses to contact you via e-mail though he is clearly online, do you think he is going to welcome a phonecall?

     While becoming more uncommon, they’re still a few new computer/Internet users out there. Also, just because they’re online (bidding) doesn’t necessarily mean they can access their email account.    If you consider this a substantial amount of money, don’t be shy about calling. I’ve found that the act of requesting contact info is more effective than the "pay your seller" reminder from eBay.

Response:

I have my first NPB, or at least this is the direction the buyer seems to be going. The auction ended on August 17.  I sent the invoice right away, and the payment reminder on August 20.  I sent a friendly e-mail on August 23, and another on August 25.  The one on August 25, I also sent via the Ebay messaging system, just in case my e-mails weren’t getting through for some reason.   I have 2 means of receiving payment:  paypal or money order.  I always state that if they are planning to send a money order, to please e-mail me to let me know.  99% pay via paypal, and the others have always emailed me to say that a MO is on the way. I have had no response from this buyer at all.  Zero.  I don’t believe he/she is on vacation or something like that, because the buyer has won a couple of other auctions since winning mine. Today marks 10 days since the end of the auction.  Is now the time to fill out the form for the non paying bidder?  How long do people usually wait?

Response:

I have my first NPB… The auction ended on August 17.  I sent the invoice right away, and the payment reminder on August 20.  I sent a friendly e-mail on August 23, and another on August 25.  The one on August 25, I also sent via the Ebay messaging system, just in case my e-mails weren’t getting through for some reason. … I have had no response from this buyer at all.  Zero.  I don’t believe he/she is on vacation or something like that, because the buyer has won a couple of other auctions since winning mine. ..

  Is now the time to fill out the form for the non paying bidder?  How long do people usually wait?

You’ve already been somewhat hyperactive by my standards. As others here   frequently point out, it’s not that unusual to just get a MO or check or even cash in an envelope, without ever receiving Email from the buyer. Unless the bidder is still bidding on the same item you’re selling, give it another week. If the bidder is still bidding on similar items hoping to get one cheaper, you might have a reason to be concerned. Is this item expensive enough to justify this much of your time? I generally would send one mail at auction end, if no contact send a followup through the Ebay system after a week, then the Ebay reminder to pay a week after that.

Response:

I have my first NPB, or at least this is the direction the buyer seems to be going. The auction ended on August 17.  I sent the invoice right away,

When you say "jump" do they respond back with "how high"? Chill…M/O’s take a while, I’ve never had an MO person tell me it was in the mail…it just shows up. Don’t start freakin or filin stuff till the 11th hour, leave yourself plenty of time to receive the $ and just enough time to hang them with a NPB notice should the $ not show.

Response:

- Hide quoted text — Show quoted text – I have my first NPB, or at least this is the direction the buyer seems to be going. The auction ended on August 17.  I sent the invoice right away, and the payment reminder on August 20.  I sent a friendly e-mail on August 23, and another on August 25.  The one on August 25, I also sent via the Ebay messaging system, just in case my e-mails weren’t getting through for some reason.   I have 2 means of receiving payment:  paypal or money order.  I always state that if they are planning to send a money order, to please e-mail me to let me know.  99% pay via paypal, and the others have always emailed me to say that a MO is on the way. I have had no response from this buyer at all.  Zero.  I don’t believe he/she is on vacation or something like that, because the buyer has won a couple of other auctions since winning mine. Today marks 10 days since the end of the auction.  Is now the time to fill out the form for the non paying bidder?  How long do people usually wait?

In my experience, if they haven’t contacted you in 10 days, and you’ve sent several requests, they’re not going to. Though in the summer I’d give it a few more days (vacations…). I wouldn’t delay the NPB much longer than that, as it may jog them into paying (it occasionally does for my sales), and you don’t want them to have forgotten about the purchase altogether. You may want to call them first (request buyer’s info from eBay on the NPB page). The first stage of the NPB doesn’t count against the buyer; that happens only when you later file for the fee reimbursement. And even then you can cancel it if the (very tardy) buyer ultimately pays. — Bubba

Response:

Scholarship's????

Question:

I am dealing with a unique situation and I am hoping that someone out here in M.S. Land has some advice… My niece will be going to college 2004. She is intimately familiar with three people who have M.S. Me, My wife, and her nanny. We each have unique situations and deal with it differently.   I am certain that she could write an outstanding piece regarding her knowledge of the disease and its different effects. All of the scholarships seem to be, "if u have a parent with M.S." Am I missing something. Thanks and smile. Eric

Response:

"Eric Weinberg" <cropsey2…@hotmail.com> wrote in message

news:f4eb148d.0308271230.78591067@posting.google.com… – Hide quoted text — Show quoted text -> I am dealing with a unique situation and I am hoping that someone out > here in M.S. Land has some advice… > My niece will be going to college 2004. > She is intimately familiar with three people who have M.S. > Me, My wife, and her nanny. > We each have unique situations and deal with it differently. > I am certain that she could write an outstanding piece regarding her > knowledge of the disease and its different effects. > All of the scholarships seem to be, "if u have a parent with M.S." > Am I missing something. > Thanks and smile. > Eric

    Perhaps I’m missing some information. Are you financially responsible for her education? Does your MS (and your wife’s) impact her families income.      If those answers are yes, then by all means get with her school councilor (High School) and explain her need. You will most likely need proof like tax info to show. If your contact at the high school is not as helpful, then approach the financial aid office of the college she will be attending. They are very good about finding all the dollars they can to help.     I’m sure for scholarship purposes the nanny is irrelevant. As of last week I have an empty nest. Both my sons are full time college kids…a new phase of life for all of us. School is VERY expensive so it’s good to research all possibilities. You should send her to the book store for one of the massive $$$ for college books….now! Many essay contest that are open to just about everyone exist, but she is starting a bit late.Perhaps she could build her essay theme off her understanding of how MS impacts lives.  They don’t always offer big $ but they can add up. Tell her it’s time to get busy, and good luck.

Response:

I can’t even get a scholarship and I myself have MS. See, I could get a loan or grant thru the govt but since I am able to work they laugh at me. We also have awards for disabled students HOWEVER most are for blind or deaf students or for students who are in a wheelchair. Grrrrrr Jen "boxi" <2120sa…@insightbb.com> wrote in message

news:3db3b.216321$It4.99903@rwcrnsc51.ops.asp.att.net… – Hide quoted text — Show quoted text -> "Eric Weinberg" <cropsey2…@hotmail.com> wrote in message > news:f4eb148d.0308271230.78591067@posting.google.com… > > I am dealing with a unique situation and I am hoping that someone out > > here in M.S. Land has some advice… > > My niece will be going to college 2004. > > She is intimately familiar with three people who have M.S. > > Me, My wife, and her nanny. > > We each have unique situations and deal with it differently. > > I am certain that she could write an outstanding piece regarding her > > knowledge of the disease and its different effects. > > All of the scholarships seem to be, "if u have a parent with M.S." > > Am I missing something. > > Thanks and smile. > > Eric >     Perhaps I’m missing some information. Are you financially responsible > for her education? Does your MS (and your wife’s) impact her families > income. >      If those answers are yes, then by all means get with her school > councilor (High School) and explain her need. You will most likely need > proof like tax info to show. If your contact at the high school is not as > helpful, then approach the financial aid office of the college she will be > attending. They are very good about finding all the dollars they can to > help. >     I’m sure for scholarship purposes the nanny is irrelevant. > As of last week I have an empty nest. Both my sons are full time college > kids…a new phase of life for all of us. School is VERY expensive so it’s > good to research all possibilities. You should send her to the book store > for one of the massive $$$ for college books….now! Many essay contest that > are open to just about everyone exist, but she is starting a bit > late.Perhaps she could build her essay theme off her understanding of how MS > impacts lives.  They don’t always offer big $ but they can add up. Tell her > it’s time to get busy, and good luck.

Response:

"Jennifer" <Jnos…@shaw.ca> wrote in message

news:IVd3b.861813$3C2.19371411@news3.calgary.shaw.ca… > I can’t even get a scholarship and I myself have MS. See, I could get a loan > or grant thru the govt but since I am able to work they laugh at me. We also > have awards for disabled students HOWEVER most are for blind or deaf > students or for students who are in a wheelchair. Grrrrrr

snip> > Jennifer, Take the grant! And the same info as above on the scholarship search. Most are smaller amounts but a good themed essay can be tweeked to meet a lot of the opportunities.You can have lots of smaller awards they add up quickly. Write from your heart about what you know or believe. Be creative and strong in your ideals and it just might pay off. Do you work with your state Voc-Rehab? Are you under-employed,or see a need for a job change due to the MS? Need training (education) it can be part of long range care plan and the state can pay for that. Contact the school you’d like to go to and find what you’d like to pursue and then ask them to help you find the way to do it. Be insistent that you must have help to pay for this. If it is loans,,,,,the rates are very low right now and you don’t have to pay it back until you finish. Basically if you have the will then there is a way.  Always take the GRANT dollars…you don’t have to pay them back!!!     This is a link to my youngest son’s portfolio http://home.insightbb.com/~saber2120/index.html and the font I used is bad… ( sorry but I think I’ve shared this here before) he is a gifted artist and this earned him over 60,000 dollars from the school he chose. He had equal offers and a couple even more $ from other schools. But he has been working toward this for most of his years in high school. Great Art dept. with teachers that care and help the kids find the competitions that get noticed by the best schools. He was one of 13 students in his art class that collectively received offers of 1.4 million in merit scholarship dollars, 12 are going on with the offers. They had to have a strong portfolio, at least a 3.0 gpa and good writing skills.     So if you have a skill or a gift and can keep digging for the $$$, I know every year dollars go unused. Good luck and be persistent!

Response:

Ummmm..the whole point is I can’t get a grant. I work and therefore if a person works they can’t get a grant. I’m a teacher and im not quite full time. I dont qualify for a bank loan because i have no equity. And the govt wont give me a loan because I work and as a student with a disability we aren’t supposed to. I just finished university last year and am going back for the 3rd degree. Jen "boxi" <2120sa…@insightbb.com> wrote in message

news:pqg3b.217853$Oz4.58383@rwcrnsc54… – Hide quoted text — Show quoted text -> "Jennifer" <Jnos…@shaw.ca> wrote in message > news:IVd3b.861813$3C2.19371411@news3.calgary.shaw.ca… > > I can’t even get a scholarship and I myself have MS. See, I could get a > loan > > or grant thru the govt but since I am able to work they laugh at me. We > also > > have awards for disabled students HOWEVER most are for blind or deaf > > students or for students who are in a wheelchair. Grrrrrr > snip> > > Jennifer, > Take the grant! And the same info as above on the scholarship search. Most > are smaller amounts but a good themed essay can be tweeked to meet a lot of > the opportunities.You can have lots of smaller awards they add up quickly. > Write from your heart about what you know or believe. Be creative and strong > in your ideals and it just might pay off. > Do you work with your state Voc-Rehab? Are you under-employed,or see a need > for a job change due to the MS? Need training (education) it can be part of > long range care plan and the state can pay for that. Contact the school > you’d like to go to and find what you’d like to pursue and then ask them to > help you find the way to do it. Be insistent that you must have help to pay > for this. If it is loans,,,,,the rates are very low right now and you don’t > have to pay it back until you finish. Basically if you have the will then > there is a way.  Always take the GRANT dollars…you don’t have to pay them > back!!! >     This is a link to my youngest son’s portfolio > http://home.insightbb.com/~saber2120/index.html and the font I used is > bad… ( sorry but I think I’ve shared this here before) he is a gifted > artist and this earned him over 60,000 dollars from the school he chose. He > had equal offers and a couple even more $ from other schools. But he has > been working toward this for most of his years in high school. Great Art > dept. with teachers that care and help the kids find the competitions that > get noticed by the best schools. He was one of 13 students in his art class > that collectively received offers of 1.4 million in merit scholarship > dollars, 12 are going on with the offers. They had to have a strong > portfolio, at least a 3.0 gpa and good writing skills. >     So if you have a skill or a gift and can keep digging for the $$$, I > know every year dollars go unused. Good luck and be persistent!

Response:

In <news:rCh3b.51648$la.951451@news1.calgary.shaw.ca>, Jennifer said: > Ummmm..the whole point is I can’t get a grant. I work and therefore > if a person works they can’t get a grant. I’m a teacher and im not > quite full time. I dont qualify for a bank loan because i have no > equity. And the govt wont give me a loan because I work and as a > student with a disability we aren’t supposed to. I just finished > university last year and am going back for the 3rd degree.

Third degree… is that like a Spanish Inquisition?  :-) ((U))   M – Hide quoted text — Show quoted text -> "boxi" <2120sa…@insightbb.com> wrote in message > news:pqg3b.217853$Oz4.58383@rwcrnsc54… >> "Jennifer" <Jnos…@shaw.ca> wrote in message >> news:IVd3b.861813$3C2.19371411@news3.calgary.shaw.ca… >>> I can’t even get a scholarship and I myself have MS. See, I could >>> get a loan or grant thru the govt but since I am able to work they >>> laugh at me. We also have awards for disabled students HOWEVER most >>> are for blind or deaf students or for students who are in a >>> wheelchair. Grrrrrr >> snip> > >> Jennifer, >> Take the grant! And the same info as above on the scholarship >> search. Most are smaller amounts but a good themed essay can be >> tweeked to meet a lot of the opportunities.You can have lots of >> smaller awards they add up quickly. Write from your heart about what >> you know or believe. Be creative and strong in your ideals and it >> just might pay off. >> Do you work with your state Voc-Rehab? Are you under-employed,or see >> a need for a job change due to the MS? Need training (education) it >> can be part of long range care plan and the state can pay for that. >> Contact the school you’d like to go to and find what you’d like to >> pursue and then ask them to help you find the way to do it. Be >> insistent that you must have help to pay for this. If it is >> loans,,,,,the rates are very low right now and you don’t have to pay >> it back until you finish. Basically if you have the will then there >> is a way.  Always take the GRANT dollars…you don’t have to pay >>     them back!!! This is a link to my youngest son’s portfolio >> http://home.insightbb.com/~saber2120/index.html and the font I used >> is bad… ( sorry but I think I’ve shared this here before) he is a >> gifted artist and this earned him over 60,000 dollars from the >> school he chose. He had equal offers and a couple even more $ from >> other schools. But he has been working toward this for most of his >> years in high school. Great Art dept. with teachers that care and >> help the kids find the competitions that get noticed by the best >> schools. He was one of 13 students in his art class that >> collectively received offers of 1.4 million in merit scholarship >> dollars, 12 are going on with the offers. They had to have a strong >>     portfolio, at least a 3.0 gpa and good writing skills. So if you >> have a skill or a gift and can keep digging for the $$$, I >> know every year dollars go unused. Good luck and be persistent!

Response:

My husband always tells my kids that they should apply anyway.  Many times scholarships are not given out because nobody applies.  How Sad!  She should make it clear that she has two close family members who have MS, etc. Sometimes the reason the scholarship is awarded is because people giving it want to help support the children of those with the disease (or who work for a certain company, or are members of an organization), but often it is given to promote awareness.  Also, where is this scholarship found that requires your parent to have MS? (I have a senior in HS myself  Kelly – Hide quoted text — Show quoted text -cropsey2…@hotmail.com (Eric Weinberg) wrote in message <news:f4eb148d.0308271230.78591067@posting.google.com>… > I am dealing with a unique situation and I am hoping that someone out > here in M.S. Land has some advice… > My niece will be going to college 2004. > She is intimately familiar with three people who have M.S. > Me, My wife, and her nanny. > We each have unique situations and deal with it differently.   > I am certain that she could write an outstanding piece regarding her > knowledge of the disease and its different effects. > All of the scholarships seem to be, "if u have a parent with M.S." > Am I missing something. > Thanks and smile. > Eric

Response:

lol..my dad says im going to be the permanent student "Michael" <muirh…@island.net> wrote in message

news:bikd2v0279f@enews3.newsguy.com… – Hide quoted text — Show quoted text -> In <news:rCh3b.51648$la.951451@news1.calgary.shaw.ca>, > Jennifer said: > > Ummmm..the whole point is I can’t get a grant. I work and therefore > > if a person works they can’t get a grant. I’m a teacher and im not > > quite full time. I dont qualify for a bank loan because i have no > > equity. And the govt wont give me a loan because I work and as a > > student with a disability we aren’t supposed to. I just finished > > university last year and am going back for the 3rd degree. > Third degree… is that like a Spanish Inquisition?  :-) > ((U)) >   M > > "boxi" <2120sa…@insightbb.com> wrote in message > > news:pqg3b.217853$Oz4.58383@rwcrnsc54… > >> "Jennifer" <Jnos…@shaw.ca> wrote in message > >> news:IVd3b.861813$3C2.19371411@news3.calgary.shaw.ca… > >>> I can’t even get a scholarship and I myself have MS. See, I could > >>> get a loan or grant thru the govt but since I am able to work they > >>> laugh at me. We also have awards for disabled students HOWEVER most > >>> are for blind or deaf students or for students who are in a > >>> wheelchair. Grrrrrr > >> snip> > > >> Jennifer, > >> Take the grant! And the same info as above on the scholarship > >> search. Most are smaller amounts but a good themed essay can be > >> tweeked to meet a lot of the opportunities.You can have lots of > >> smaller awards they add up quickly. Write from your heart about what > >> you know or believe. Be creative and strong in your ideals and it > >> just might pay off. > >> Do you work with your state Voc-Rehab? Are you under-employed,or see > >> a need for a job change due to the MS? Need training (education) it > >> can be part of long range care plan and the state can pay for that. > >> Contact the school you’d like to go to and find what you’d like to > >> pursue and then ask them to help you find the way to do it. Be > >> insistent that you must have help to pay for this. If it is > >> loans,,,,,the rates are very low right now and you don’t have to pay > >> it back until you finish. Basically if you have the will then there > >> is a way.  Always take the GRANT dollars…you don’t have to pay > >>     them back!!! This is a link to my youngest son’s portfolio > >> http://home.insightbb.com/~saber2120/index.html and the font I used > >> is bad… ( sorry but I think I’ve shared this here before) he is a > >> gifted artist and this earned him over 60,000 dollars from the > >> school he chose. He had equal offers and a couple even more $ from > >> other schools. But he has been working toward this for most of his > >> years in high school. Great Art dept. with teachers that care and > >> help the kids find the competitions that get noticed by the best > >> schools. He was one of 13 students in his art class that > >> collectively received offers of 1.4 million in merit scholarship > >> dollars, 12 are going on with the offers. They had to have a strong > >>     portfolio, at least a 3.0 gpa and good writing skills. So if you > >> have a skill or a gift and can keep digging for the $$$, I > >> know every year dollars go unused. Good luck and be persistent!

Response:

I believe the MS society gives out loans "Kelly" <kbranc…@hotmail.com> wrote in message

news:1e606e8f.0308280545.1ba79d1c@posting.google.com… > My husband always tells my kids that they should apply anyway.  Many > times scholarships are not given out because nobody applies.  How Sad! >  She should make it clear that she has two close family members who > have MS, etc. Sometimes the reason the scholarship is awarded is > because people giving it want to help support the children of those > with the disease (or who work for a certain company, or are members of > an organization), but often it is given to promote awareness.  Also, > where is this scholarship found that requires your parent to have MS? > (I have a senior in HS myself  Kelly > cropsey2…@hotmail.com (Eric Weinberg) wrote in message

<news:f4eb148d.0308271230.78591067@posting.google.com>… – Hide quoted text — Show quoted text -> > I am dealing with a unique situation and I am hoping that someone out > > here in M.S. Land has some advice… > > My niece will be going to college 2004. > > She is intimately familiar with three people who have M.S. > > Me, My wife, and her nanny. > > We each have unique situations and deal with it differently. > > I am certain that she could write an outstanding piece regarding her > > knowledge of the disease and its different effects. > > All of the scholarships seem to be, "if u have a parent with M.S." > > Am I missing something. > > Thanks and smile. > > Eric

Response:

Buying Strips

Question:

Ratty, I’m on Metafortin ?? 2*500mg per day The doctor supplies me with 100 at a time, at 4 a week (twice Monday, twice Thursday) they should last 25 weeks. I would like to test my blood more regularly than that (4 times a day), so that supply wouldn’t last a month. I don’t think he would be too happy dishing out that amount

Why?? It’s not HIS money he’s spending, it’s YOUR money that you’ve paid into the NI fund every fuckin’ week. Don’t ASK for more, TELL him. In the nicest possible way of course. Beav

Response:

Ratty, I’m on Metafortin ?? 2*500mg per day The doctor supplies me with 100 at a time, at 4 a week (twice Monday, twice Thursday) they should last 25 weeks. I would like to test my blood more regularly than that (4 times a day), so that supply wouldn’t last a month. I don’t think he would be too happy dishing out that amount David

David McCallum posted this… I’m on a little meter (can’t remember the name just now something like Lifescan) that takes little black strips to measure my blood. Does anyone know if I can buy these strips, or do I always have to get them through prescription David McCallum

If you buy them retail then you would pay a lot more than

Please read this…….

Question:

- Hide quoted text — Show quoted text – says… says… I am having a cold. feels like when I had chemo anf neutripenia. I had my voice back for 3 days, called my oncs office to let him know the hreat news (paralysed vocal chord due to pressure on nerve by rumor in hilus) and 2 days later I coughed so hard I lost my voice again. After a while speaking it lowers a bit, so I sound like a boy with a chemging voice(we call that: with the neard in his throat) Is that the orginal tumor or the second one?  if the latter, can’t they do something about the 2nd one (radiation)? Are either ones not responding to the chemo (or radiation) you are currently taking? I am only taking Iressa. It is the primary. It had its dull sjare of rads. the primary has had it’s maximum allowable rads? I do not know where the second is, neveer stopped to ask(fatalist me) I also gave a very tiny one on the adrenal that hasn’t grown for a year. I went to bed at 2 AM, and woke up coughing and sneezing at 4. low WBC’s ? getting a cold? Must be the fibro though(the short sleep cucle, 2 hours on 4 hours off. Tedious, as I have a morning temper). Do you mean temperature? or temper? If the latter, I won’t bug ya in the morning I het a new CT scan on March 6th. But vloodwork incl CEA next week. Hope it is down a bit, was 141 before I started Iressa. So the tumor in the hilus isn’t interfering with breathing or swallowing? And no pain? What happens next if your CEA is down (or not?).  More Iressa? I wonder what nerve ?  The vagus and phrenic nerves go all over.  Can cause hiccups, maybe sneezing? don’t know actually. Best, J No, if you have a tumor in the hilus you can get pain in the left arm or a paralysed vocal chord on that side.

Hi Rian, I found the following which explains (in part) the arm pain, the nerve and the adrenal tumor.  Perhaps even more of what you are experiencing. Hope this helps, J http://www.intouchlive.com/myths/lung/Lung04.htm It is a fluke of embryology that the recurrent laryngeal nerve that controls our left vocal cord passes from the neck down into the chest, wraps around the main blood vessel coming from the heart, and goes back up the voice box to control the left vocal cord. Therefore, a tumor that has spread into the mediastinum